I have received my results of US scan yesterday at 6:45pm by dr through text with results form attached. All very digital and feels more like being treated by robotic consultants, anyway.
The new is official that I do not have an enlarged liver and I do not have swollen kidney. I have a small insignificant hernia.
On the text it said the findings are HS ( mild fatty liver) and there is no need for follow up investigations or appointments.
Should I wish to speak to a dr please make a non urgent appointment. So in 15 months I am back to beginning. Bloods are still elevated ALT and GGT. I have gone round in circles.
I have asked for a fibro scan , I have asked for a the fb 4 blood tests but they say no need but BLF recommend that you tell them under NICE charter.
My family and friends say enough now but having read peoples experience on here I just don’t know why they won’t further investigate. I’ve had no alcohol list 2 stone but still have he pain.
I wonder if internet is just fuelling the Afro sometimes. Years ago if dr said your ok then that was that, nowadays though there is little trust left, especially as we move more digital and impersonal.
Good luck everyone who is starting a journey, or along the way. I’m thankful that my road is making me aware it has a few pot holes in it and nothing that going to slow me or stop me. I don’t want to take up people time who need it, but I for one just can’t fight anymore to get to the root cause of elevated bloods one saying this one saying that it’s draining so I will plod on with what I’ve learnt from here. Thank s BLT x
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Seoe
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Hi Seoe.So other than a mild fatty liver which can be cured by a healthy diet and lifestyle your liver is fine ... happy days. It means you don't need a fibroscan. Over time with the healthy diet and exercise your pain will subside. I think your family and friends are right ... you need to get on with your life or ask your doctor to explore other avenues besides your liver if you have not been reassured by these results. Please also remember many GPs are still not seeing all patients face to face and your results would be no different being on a text as to if he were to be sitting in front of you.
Yep, when I was referred a few months before covid my LFTs were 8x maximum, I was mildly yellow and only managing to force a meal down every other day. I was told the wait for urgent was 4 months. It would have been 9 months if I was less urgent. I wonder how long it would have been if people who had already had tests that cleared their livers weren't pushing for more and more unnecessary tests.
If something is wrong, see a doctor, but if they have ruled out your liver, look elsewhere for the cause.
So many people are not believing their doctors or the tests, but I bet every single one would have believed them if they had showed a problem.
I am paying for and have paid for further testing out of my savings, I know I’m fortunate that I can do it. The poster said that family and friends were advising him not to have any more tests that’s why I said what I did. If you still feel there’s something very wrong you should carry on trying to find the cause, it’s your health, that’s what I meant. Just common sense to me.
So you just randomly pay for tests despite not having symptoms just on the off chance you may have something or do you have symptoms and pay i don’t understand .Have you been diagnosed with anything ??? I’ve had a quick look and the docs seem to think your fine with nothing to worry about worrysome 1 is that correct ??
If I didn’t have symptoms, I wouldn’t be paying for more tests. According to reports on here, US scan, LFTs and even Fibroscans can be wrong. I have seen quotes from a book, stating “the liver is a master of disguise”. If I was my usual self, I wouldn’t be typing this at this time, I would be blissfully asleep. Sounds like you’re going in the right direction, hope you’re fully recovered soon.
So what are the symptoms and what tests have you had just out of interest??? Yeah I’m going in the right direction, thinking positive but it could take a while but I’ll get there
Pale stools, impossible to pass without Lactulose. Gross, strong smelling urine. This should be a private message! Blurred vision with eye floaters. Toxic taste in mouth. Definite brain fog and change to sleep pattern. Hair loss. Cholesterol has risen greatly in 6 mths, an efficient liver would be dealing with that. GP doesn’t want to know because of LFTS being normal but over and over again people on here say they’re not reliable. She sent me for US but I wanted portal system checked out so I paid for another one. Had a fibroscan done privately.
My Gastro appointment has been put off again until September so I’ve decided to go private for MRI scan. I just want to be myself again if possible. How are your symptoms now?
Still in pain in right side , pain in legs ,fatigue , sleepless nights bloated etc but putting faith in my doctor and keeping a positive outlook that I will get better I think is key I know worrying too much is not going to help anything so I just focus on the good things
I’m a worrier by nature, especially health. I shake with fear, I nursed my husband with cirrhosis until the end but he wouldn’t give alcohol up, he seemed to be ill for years. I liked my wine at the end of the day but always swore the first sign of it damaging me, I would give it up and I did 7 months ago. Just hope it’s not too late. You have the right attitude and I wish you all the very best.
Change your diet and exercise, instead of wasting time and money on private tests. You won’t listen to the advice you have been given here, and now you are encouraging others to clog up the overstretched health system.
Nothing to do with diet and exercise. It’s up to me how I spend my well earned savings. I’ve been in very good health until December and I know I’m not well. I don’t go near doctors if I can help it.
Alas, the majority of liver disease has everything to do with diet and exercise. Your ‘symptoms’ don’t resonate with anything that I experienced on my journey to transplant. So clearly you are wasting your time on a liver forum and I urge you to follow the advice given to you by the Trust and step away and try to lower your anxiety rather than encouraging people to get pointless tests. Accept that the vast majority of fully qualified doctors know what they are doing and we have an excellent health care system that is sadly underfunded and overstretched.
If I have cirrhosis it will be because I have drunk too much wine for too many years. My diet has always been good and I walk for an hour every day. From what I’ve learned on here, it needs several tests to diagnose cirrhosis.
No amount of tests or scans nhs or private or anyone on here who are suffering the hell of living with cirrhosis will ever convince you that you don't have the disease.
Do you really think after witnessing what my husband went through, that I would actually WANT cirrhosis? If you had said, I was stupid for drinking over the NHS guidelines, then yes I would agree with you after all I’d seen him go through. I thought I was in another category altogether. Being on here has shown me I wasn’t. I don’t want to scare people diagnosed, as his problem was that he could not give alcohol up even though he was so poorly. To actually suggest that I want to hear the doctor tell me you’ve got cirrhosis is wicked. Absolutely wicked.
Completely agree, The only person that cares about your health is yourself! Doctors don’t care it’s a job at the end of the day to them. I was told by numerous doctors I was fine but I knew I wasn’t I kept on pushing until I finally got a rheumatologist app and was diagnosed with lupus! If you know something isn’t right then keep pushing for further test, ask for a second opinion and tell them to note it down they have refused! Good luck.
So Seoe, I’m no doctor but I know from friends and family’s experience that right sided pain comes with fatty liver. Your weight loss could be worry and alcohol is full of calories, so abstaining would cause weight loss. As I say if you’re still worried you should insist on finding out what’s causing your symptoms and not be fobbed off, it’s your body at the end of the day.
So sorry your post has become a worrysome pity party. Hopefully the trust will remove the worrysome, they have tried before
If you want a fibroscan you may have to go private. They don't just give them out really. I was quite poorly and was never offered one.
Please bear in mind that you may have a fibroscan and you still don't believe the results. There needs to be a point in which you can accept the results given and believe the doctor. As you can see on this forum there are far too many people who seem to not believe what they are told by health professionals and are constantly looking for more tests, no matter how often they are told they are healthy.
Had one, paid privately. Going for MRI scan next week and paying privately. I’m not healthy, I always have been but now I’m not. From what I gather and from the words of the trust, several tests are needed to diagnose cirrhosis to fit the pieces of jigsaw together.
The reason why you paid privately is because your initial tests, showed no need for further tests. If they indicated a problem, then you would be referred to an appropriate Consultant, who would conduct further tests to determine the extent that the initial tests showed.
But as I have already stated, you refuse to listen to anyone.
I understand but people have had the all clear on here with the tests that I’ve had and still went on to have cirrhosis diagnosed. That’s why I’m stuck here with symptoms and mistrust of the tests.
If we all believed social media (rather than qualified doctors), then Covid is a hoax and Elvis is having a beer with Jim Morrison in a Mediterranean bar!
As though I don’t know that and all the others on here who’ve done the same thing. Not helpful, there are reasons why people drink too much. If I’m lucky enough to have got away with it, I will never touch it again and will do as another member is doing, I will take a course in counselling to help others with alcohol addiction and will raise money for the trust. I have in the past, all donations from my husband’s funeral went to here. After that statement you have just made I should imagine you will have upset a lot of people on here. I hope that the trust takes note.
ONCE AGAIN we are having to close posts down due to forum members arguing. Seoe we are so sorry your post is hijacked. We will be messaging members today and if this occurs again, restricting them.
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