Fibro Scan Results. What do they mean?

[Kylewillmott]

Hi all.

I have questions about my fibroscan results.

My CAP was 314

My LSM or KPA was 4.8

I was having the scan as part of a uk clinical trial. The clinical nurse said the LSM was great but the CAP was high.

My GP who three months earlier did an ultrasound and took loads of bloods said I had mild fatty liver and should change my diet. But I am a 33 year old male 6ft 1inch tall, never drank, pescatarian, 12 stone 7 (healthy BMI) and stay away from sugar.

Surely a cap of 314 means I have more then mild NAFLD?

Should I force to see a specialist as I don’t seem to meet the criteria for the disease but had a fam history of NAFLD, PBC and AIH.

Thanks in advance.

[Zukosmile07]

Alright KyleI would be cutting out high salty foods also greasy/deep fried things with no alcohol at all until the fatty liver recedes. That should bring your cap score down and with a KPa 4.8 you are under more than mild. Katie will probably tell you the exact account. I'm just living proof. Try not to worry and just follow the dr's advice. It will get better with healthy living.

[Kylewillmott in reply to Zukosmile07]

Thanks for the response and some clarity.

My diet is pescatarian. So I don’t eat meat. I eat good fats and lots of greens. I drink lemon water and green tea daily, fruits high in anti oxidants and take tumeric and milk thistle. So I’m unsure what else to do. I suppose cut out sugar all together and really up the exercise?

My father has PBC of the liver and AIH as well as type 1 diabetes. My mother has NAFLD and my sister has NAFLD and an enlarged spleen.

I wonder if I am genetically predisposed to the condition?

[MINTVCX in reply to Kylewillmott]

Well I think it is good idea to let your doctor know about your family's disease.

What I found about NALFD:

"An increased risk of developing NAFLD can be passed through generations in families, but the inheritance pattern is unknown. Variations in several genes as well as lifestyle and environmental factors contribute to the risk of developing this complex disorder."

AIH:

" Heredity. Evidence suggests that a predisposition to autoimmune hepatitis may run in families."

PBC: pbcfoundation.org.uk/pl/hea...

So nothing conclusive but if it seems you have fatty liver regardless your life style which is healthly as you said. So from my amature point of you some genetic factor can be involved. But that's only my guessing. Anyway your fibroscan result is great which is a good news and you do not have any significant fibrosis (> F2) with very high probality.

[Kylewillmott]

Thanks for your response.

I will certainly push the fam history on my GP. I am enrolled on a clinical trial with Panthera due to falling outside of the risk factors.

My ultrasound suggested no inflammation or scarring of my liver etc. Which I’m happy about. But my concern longer term is how to slow or reverse the condition of my lifestyle and diet isn’t a contributing factor. Do my genes dictate the severity of the condition and ultimately my lifestyle and nutrition won’t change the outcome? I’m not sure that can be answered

[Zukosmile07]

Yes there is something underlying. You still need to see a team of some sorts. They will give you a full going over. You may need a CT scan or MRI, endoscopy. See if the family can get a hold of their service history.All the best Danny.

[Kylewillmott]

Thanks.

Yes I believe so. Or it is indeed just genetics, I would prefer there it to be something underlying so I can do something about it.

What is also interesting is when I was 18 (33 now) I had a routine blood test that revealed all the same liver enzyme elevations as I have now. I just never followed up back then.

I will be pushing my GP to refer me to a specialist and the doctors in charge of the study Im on.

[Zukosmile07]

Ok I've had a transplant I will let you read my results when I was bad. Just to settle you down. I turned these around but the cirrhosis was too far gone.

[Zukosmile07]

Hope this helps because the blood and the cap can be turned around.

Musty white

[Zukosmile07]

I know mine is mainly alcohol. Some underlying conditions will escalate double time with alcohol. Katie will know,she will probably read this tomorrow. Danny

[Kylewillmott]

Thanks for sharing. I’m very pleased you have had your transplant and I hope all is well.

I think I just need to understand why my results are as they and and what the reasons could be. I’m sure that will come through the Panthera study and being referred to a specialist.

[Zukosmile07 in reply to Kylewillmott]

Perfect... I wish more people had your approach. (LET'S FIND OUT WHAT IS WRONG) Yes get to know what is wrong and deal with it. It is far easier to handle once you know. It maybe just balancing your diet rather than just eating healthy. I know I had mixed advice to start. I got told no sugar and no salt at all. When in actual fact I needed lots of sugar and 5g of salt per day. Became increasingly better in a matter of 2 weeks.Good luck Danny

[Zukosmile07]

PS I'm feeling good, the specialist's are the people who don't dismiss things even the little things. I got sent home for 6 months with pain killers and a discharge letter saying that there is nothing more that we can do. Straight up I had to fight my way through the system just to get through to a consultant who could recommend me to the right hospital. Just a real case of look we don't have enough money to deal with the liver. I was exhausted at the same time as no help financially, dealing with the nasty disease in the prime of the COVID outbreak with a life expectancy of 1 to 3 years rattling around my confused mind. I think you are a inspiration and should keep us all posted on your journey.... 💯💓

[Kylewillmott in reply to Zukosmile07]

I’m sorry you went though that during Covid and had to push for everything. My GP simply sent me a text after my ultrasound saying I had NAFLD and said to cut out drinking and red meat/sugar and lose weight. She hasn’t ever met me face to face due to Covid restrictions and had forgotten I had told her I have never drank I’m healthy bmi and don’t eat meat. I’m hoping the trial I am doing provides me with more access to specialists then the NHS. I have a fibroscan with the nhs in jan and will do that and take the results from a few days ago as well. I suppose just insisting upon further examinations and tests is the only way to go with the NHS. Or go private? I certainly need to get to the bottom of why I have NAFLD.

Also I think that’s really interesting about your specialists advice on food. I’ve cut our sugar completely. Very little salt. Maybe I need more sugar. But eating sugar (other then in fruit rich with anti oxidants) makes me feel sluggish and dizzy. Possibly something to look into.

This forum and speaking with you guys has helped as when I looked at my Fibro score I thought my GP had made a mistake and somehow I had serve NAFLD or worse with no symptoms.

[Zukosmile07 in reply to Kylewillmott]

It is great to talk and take the weight off. It's not a cure but it kicks worries sorry arse. Chase's off anxiety just knowing that you aren't on your own.Good luck

Danny