Hmm....any ideas on the possibility of... - British Liver Trust

British Liver Trust

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Hmm....any ideas on the possibility of my liver to be compensated?

Hey___ profile image
7 Replies

Hi all!!.. I do wonder about the possibility of my question as I seem to get varied responses from different medical professionals.

I was Decompensated in January to February. I have however improved in many ways including controlled ascites, weight gain and muscle mass. My GP told me that my bloods have really improved and to stick with my diet and wellbeing. My Endoscopy results were varices/ Grade 2. I understand this is not the worst but not great. Do they improve if your liver does?

I have a telephone consultation with the consultant on Thursday and a transplant assessment on the 27th. I am concerned about my eligibility for transplant but I will definitely go through with the appointment. Although I am sober there are possible other factors that they may query.

My current side effects are dizziness, chronic fatigue, aches in my liver and I wee lots!😶.

I read stories of people living a fulfilling life after decompensation which gives me hope. I am 47 and I still have things I want to do in life. If you have any ideas please let me know. It would be highly appreciated. Thanks, Mark.

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Hey___
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7 Replies
bintcliffe profile image
bintcliffe

Hi There, I was decompensated and at the time I was 47, 3.5 years later I am well compensated so it is well possible to live your life to the full, listen to your doctor's but I'm sure you will be ok.

Hayley

Hey___ profile image
Hey___ in reply to bintcliffe

Hi Hayley. Thanks for that. You was 47 too! Well done and keep going. I need to hang on to positive stuff but you are right, I will listen to the liver doctor as my GP can be a bit random.Mark

Dotandken profile image
Dotandken in reply to bintcliffe

So if compensated does that mean we are safe now, and just to carry on with life? Compensated after two years abstinence! Not much contact with professionals. A bit lost!!

bintcliffe profile image
bintcliffe in reply to Dotandken

Hi there, I don't know what the future holds but I live for today and keep doing what I'm doing , eat well, no drink and plenty of walking my consultant says there's no reason I cannot live a normal life, so I do, cirrohsis is just what I have to live with but it doesn't stop me living my life.I wish you well.

Hayley X

Chaz3125 profile image
Chaz3125

Hi hey! I was decomp in 2019 and I am now compensated and happy and feel healthy! I was 42 at time x

Dotandken profile image
Dotandken

Just feeling like all my hard work to get better has been bypassed and just left to get on with it!! X

Str8jacket profile image
Str8jacket

It's important to keep in mind that the course of disease varies significantly depending on the cause of cirrhosis. Autoimmune and viral hepatitis cases seem to have the best track record of stabilizing, but it happens with alcoholic liver disease too!

journal-of-hepatology.eu/ar...

Keep up the good work! Keep an eye out for dizziness. If you feel confusion, trouble concentrating, reversal of sleeping pattern (night to day) etc., you may want to ask your docs about hepatic encephalopathy. I started lactulose and it helps, though still not feeling fully "normal" mentally.

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