Hello everyone.
Quick bio. Diagnosed advanced ALD last summer (severely decompensated with gross ascites and small varices) was very ill but not hospitalised. Had already stopped drinking as I knew that was the problem. Have been improving steadily over this time but fell off the wagon when my mother became very ill, then died last month, made worse by lockdown. Now on the wagon again and organised bloods this week to see what damage I had done.
Bloods are generally much better than I deserve, even bilirubin is OK but.... GGT is still horribly high. I am just wondering if I can ever get the GGT into good levels considering that the damage is already done? It was a horrific 876 (normal is under 36) It has had a constant downward trajectory since and is now 240
What is realistic for someone with ALD or what are other people's "normal" levels with ALD?
Thanks all, Wendy
Ggt levels and dvla 
After 10weeks abstinence I still have high ggt and asp levels
blood tests show raised GGT levels , could do with a little reasurance 
Increased level of GGT in blood test.
High GGT and cardiovascular risk
Hi Wendy 🙂. your story is so so very similar to mine ! Exactly to be infact only I lost my father to cancer , I’m so sorry to hear about your mum 😏.
I was decomposed ALD , ascites, had 3 drains . Jaundice etc .. 6 months left to live . GGT was 600 plus .
I fell off the wagon myself when dad passed away . It took me two years to come off the dreaded alcohol so well done you !!
I’m now 12 yrs with cirrhosis, good diet , no booze , good nutrition and regular check ups with Hepatology clinic , I do have issues regard to fatigue , insomnia , itching etc.. so yes you can get the read dog your GGT down in time . My GGT last November was 40 👍🏻.. stay safe and try to be strong in this difficult time
Linda 🌈💐
That is a brilliant help Millie, it is also nice to know that you have improved so much so I can do it too. Itching drives me barmy and the fatigue, I luckily don't have insomnia, I sleep for an Olympic Sport but it isn't very convenient being tired all the time. Thank you for replying and bless you, wishing your continued improvement. Wendy
Hi Wendy !
It’s my pleasure . If I can be of any help or an example of what could be achieved . Obviously not all of us are in the same bracket so to speak . Aghhh ! The itching is driving me up the wall this week ! Lol ! I wished I could sleep like that 😂, but non of us have the exact same symptoms anyway but pretty similar .
You keep on doing what you are doing Wendy 😊! There is a better sun over the horizon
Linda x
Sorry. Linda! not Millie. I am sure I am not supposed to but I find when the itching has gone beyond maddening that an antihistamine solves it pretty quickly. I try not to ever take any drug whatever so my liver has nothing else to deal with but sometime needs must
Hi Wendy ! Well my dr prescribed me Piriton and my liver consultant gave me some cream called Dermacool . The cream is ok short term for half hour 😕, but I’m afraid to take the antihistamines as I’m on pregabalin for my neuropathy
Do you mind telling me about your neuropathy Linda?