Shaking

[Bs1524]

May I ask you guys if you have or had had trembling and shaking? My husband has been feeling a bit odd he just says unwell we have spoken to the doctor who says you really need the transplant team appointment.

Do you know why the shakes happen?

[Laura009]

All part of the disease Pam. My hubby was exactly the same x

[AyrshireK]

Tremors especially if his arms and hands are flapping whilst arms are extended to the front, palms forward, fingers up then it is known as Asterixis (a.k.a. Flapping Tremor or Hepatic Flap) and is a common sign of Hepatic Encephalopathy.

I take it you have had no further word on transplant assessment as hubbies symptoms are gradually getting ever worse and he needs to be on that list a.s.a.p.

Thoughts with you both,

Katie

[Bs1524 in reply to AyrshireK]

I have checked him and he isn’t flapping and he doesn’t look like he is trembling but if you touch him it is possible to feel him trembling. The last couple of days he said he felt off but could’ve explain I have been in touch with the GP and she felt he didn’t warrant admission. He got very down mentally feeling he was unfair to me and everything I am having to deal with and thought I would be better off if he ended it. He has been finding it harder to deal with the symptoms the longer it has gone on we have talked it through and he doesn’t feel like that now I have said while we are waiting for the appointment let’s work on getting him as fit as we can.

[Bootandall]

Did the doctor say you could increase his lactulose? That might help?? Prayers 🙏 you can get him seen for an assessment. In these unprecedented times, maybe there is a possibility of a home visit? It may be a long shot, my daughter mentioned a mobile vet to me, but I know nothing, just wondering aloud.

[Bs1524 in reply to Bootandall]

Hi, yes we have increased it and then things went too far the other way. I guess this disease goes up and down and round and round.

[Bootandall in reply to Bs1524]

Yes unfortunately, it is better though to have diarrhea then the shakes. You really need to talk to his doc for best advice. So sorry you have to go through this.

[one2one]

Commonly referred to as mole hills, symptomatic : blips :. Pops up every so often. We all vary with these.

Mine tends to be sudden onset of either nausea, lethargy, itching, tremors. These can lasts minutes, hours or sometimes days. I just put myself in time out, and totally relax on my bed. It’s always worked for me. I don’t think 💭 even we realise that we’ve possibly overdone it sometimes, we need more rest than we realise. Little and often is the key

Chrissie.👌

[Brightstar15]

I was trembling so bad yesterday that my husband had to put me to bed at 6pm. I could not stop shaking my hands are constantly freezing and feet and body. His this part of liver disease? I was going to phone GP Monday had I have never had it before. How is he know? I feel for him. Anna

[Bs1524 in reply to Brightstar15]

He seems to have calmed down I really feel sometimes constantly feeling unwell takes it toll and it has all caught up with him mentally and physically. He is also feeling a lot of guilt.

[Bs1524 in reply to Brightstar15]

That does sound a lot like my husband for someone who didn’t feel the cold is now cold a lot of time.

Hope you are feeling better now?

[Brightstar15 in reply to Bs1524]

Bless him if I know the feeling of being down and feel like a burden on times. I know I am not. He is not alone. I am still feeling very giddy and light headed. And not eating. But been to scared to phone consultant because I know he is busy in our hospital with Covid-19 don’t want to trouble anyone. Your both not alone Anna.

[Bs1524 in reply to Brightstar15]

I had missed out his feeling lightheaded and giddy sorry you are feeling like this too but it does help,to hear his symptoms aren’t unique.

Take care x

[Laura009 in reply to Bs1524]

None of the symptoms he is showing are unique Pam. They are all symptoms of cirrhosis/liver failure. He really does need that transplant x

[Bs1524 in reply to Laura009]

Hi Laura,

I know and he does too. What if he doesn’t make the list. I never say that to him but I can to you guys. I never voice my fears to him ever.

[Lam1e in reply to Bs1524]

Hi Laura, I know that feeling. Stay positive and ensure he does what the Dr’s tell him/you. I was recommended a high protein diet, and tried to stay as fit as I could almost like a ‘prehab’. When I was being assessed I took it one test at a time. When they first mentioned transplant to me I didn’t think I was anywhere near ready! But I worked at it, so when it was discussed again 4 months later I was in a much better place physically and mentally! So focus on the present and stay positive👍🙏

[Huggy7614 in reply to Bs1524]

The last 7 months for me I was permanently cold, would sit on the radiator with my coat on while the rest of the house would be wearing t shirts. Also found tremouring and difficult to hold tools at times. The liver acts as the body’s radiator. But the first thing I noticed after I woke up from tp was I wasn’t cold any more.

We are rooting for you both. Must be so hard at the moment.

[ThreeSmiles in reply to Huggy7614]

Huggy - exactly the same for me. In fact when I went for the Assessment the nurse asked all of us potential transplant patients to put their hands up if they had been cold when their carers/partners had been hot - every single one of us put our hands up (all 7 of us that is - there aren’t many are there, which makes you realise how “lucky” you are!)

Miles

[Huggy7614 in reply to ThreeSmiles]

It was only when I went to my first appt at qe and they said yes we’ll put you forward for tp assessment, the dr said “are you always cold??” And I just jumped and said yes, yes, is that a liver thing too!! I had no idea the two were connected!!

[ThreeSmiles in reply to Huggy7614]

I was at QEHB too 👍😑

[Lam1e in reply to Brightstar15]

I lost a huge amount of weight and was always cold but when they started me on calvidelol (beta blocker) my hands and feet were always cold. Now I am 4 moths post transplant and no longer have the ‘cold’ problem.

[ThreeSmiles in reply to Brightstar15]

Hi Anna

As Pam and Huggy have said - that is very normal, unfortunately- please see my comment to Huggy.

Hope everything goes OK for you.

Good luck

Miles

[Angelann69 in reply to Brightstar15]

I get these same symptoms. I still have cold hands and feet that turn translucent and sometimes blue. I was diagnosed as having low B12 and received injections once a month. This helped but with Covid now I can't go for injections. I'm now taking 2500mcg sublingual and it helps but not as good as the injections. I hope this helps.

[Beautysmum]

Hi, Yes, I get the trembling symptom. I had it EXTREMELY badly for several months during 2018 before my NASH was diagnosed and while I had Hepatitis E. I still get it from time to time now even though my bloods have been in the normal range for almost 2 years.

[utep99]

Shaking is one of the signs of Cirrhosis. It is called flapping. It does not nean something serious going on. It is just one of the many symptoms.