Hi there everyone!
After a month of waiting and having a HE nearly every seven days or so, then recovering time with vomiting shaking, sleeping on and on, I finally saw one of my favorite specialists at clinic.
We spoke to her about everything. I cried a lot.
It's been just over four months since we got the diagnosis about the new liver failing mechanically and having the shunt done. Still, I had hoped to get more time before going back to be processed.
So in December I will go back into Addenbrookes for the three day work up. To make sure I'm able to, and healthyenough to go back onto the list. I just hope I am. I got lucky the first time around with my blood type..A-.
It's all still sinking in, but as I said, I knew it was coming..I just had hoped it would take longer. I'm on the best meds for the HE. They did up my dose of lactulose and added another one. So I hope that helps.
Love and gratitude to all of you out there still fighting the good fight!
Aka your American pickle