Elric 1: I have cirrhosis and I am... - British Liver Trust

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Elric 1

Elric1 profile image
18 Replies

I have cirrhosis and I am becoming confused more each day does anyone know if I should be taking Xifaxan because this helps with the confusion and stops you slipping into a coma ??? Kindest regards Elric 1

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Elric1
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18 Replies
Laura009 profile image
Laura009

Hi Elric.

Are you also taking lactulose? You need to be. Your doctor should be prescribing it for you.

Best wishes Laura

Elric1 profile image
Elric1 in reply toLaura009

Thanks Laura009

Elric1 profile image
Elric1 in reply toLaura009

should I be taking Xifaxan ?

Elric1 profile image
Elric1

No Laura I'm taking dulco lax I'm going to Drs to get sorted do you think I should b using xifaxan ?

AyrshireK profile image
AyrshireK in reply toElric1

Lactulose is usually the first medication for any signs of HE, it isn't just a laxative but actually has special properties that removes toxins from the body via stools. You should be going to the toilet (moving your bowels) three to four times daily to remove toxins if not then you might start getting HE symptoms. Your doctor should be able to assess whether or not you are showing signs of this - blood tests for ammonia plus physical tests (for hand flapping etc).

My hubby was only put on Rifaximin two years after initial cirrhosis diagnosis (by transplant clinic doctors) before that just lactulose.

Katie

Elric1 profile image
Elric1 in reply toAyrshireK

Thanks for that what country are you in ?

AyrshireK profile image
AyrshireK in reply toElric1

Scotland

Elric1 profile image
Elric1 in reply toAyrshireK

Thanks you give me fuel for my next debate with the system

davianne profile image
davianne

Hi Eric, I just take lactulose for HE. I've never been prescribed anything else for it. You should check it out with your GP or Consultant.

We, on here, are not qualified to give the advice you seek.

David

Good morning,

Good advice from fellow forum users but as Davianne says this is definitely something to discuss with your liver team.....

Elric1 profile image
Elric1 in reply to

Got the best advice on here wish I could get the same from the system

Chatterbox3517 profile image
Chatterbox3517

Hello Elric, please tell your doctor to prescribe you Lactulose. My hubby was in the hospital because his ammonia level was too high. That is what is more than likely causing ur confusion. Hope all goes well 🤗

Elric1 profile image
Elric1 in reply toChatterbox3517

Thanks 🙏

Terricotta profile image
Terricotta

Hi Elric1, what have the doctors given you the xifaxan for?

AyrshireK profile image
AyrshireK in reply toTerricotta

He hasn't been given Xifaxan, that's what he's asking about and whether he should perhaps be on it. He feels he has symptoms which might be related to Hepatic Encephalopathy although not yet discussed with medical team. Rifaximin/Xifaxan is a treatment usually used in conjunction with lactulose to treat toxin build up which can lead to HE.

Terricotta profile image
Terricotta in reply toAyrshireK

Thank you for your reply, AyrshireK. My mistake - I misconstrued. Is it normal to be given such a drug for encephalopathy?

AyrshireK profile image
AyrshireK in reply toTerricotta

The usual first line treatment for potential HE would be lactulose and now often in combination with Rifaximin. My hubby was on lactulose only for 2 years then Rifaximin was added when he was assessed at t/p unit. Still on both now. Still has minor HE type symptoms but has never (thankfully) had any more serious sign of it.

Elric1 profile image
Elric1 in reply toAyrshireK

That my friend is so helpful thanks again

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