Elric1

[Elric1]

Hello 👋 again I was diagnosed about two years ago with cirrhosis and now I'm slowing down ,do I need to take xifaxan because I feel confused as well ? Ps no alcohol ever

[Hidden]

Hi

You might be as well phoning your consultant's secretary so that she can have a word with him to see what's going on.

[Elric1 in reply to Hidden]

Thanks for that I'm going to Drs tmo to get it sorted feel badly informed regards Elric

[Hidden in reply to Elric1]

It's just a pain having to sort something else out!! Good luck tomorrow

[Elric1 in reply to Elric1]

I need al the help and advice I can get and it's the best and most honest on here thanks Oldham 12 thank goodness for this site

[Elric1 in reply to Elric1]

Cheers buddy

[Elric1 in reply to Elric1]

Hey Oldham when u get a min tell me how u r doing ? You're cool 😎 thanks again

[Sydney04]

Hi there, I've been taking rifaximin since I was diagnosed. I don't know which country you're in but Drs try and get out of prescribing it in the UK because its expensive

[Elric1 in reply to Sydney04]

Thanks I am beginning to understand that fact

[Elric1 in reply to Elric1]

Tell me in you're opinion does it work for you ?

[Elric1 in reply to Sydney04]

Tell me does it work for you ?

[Peppy05]

Hello Elric1, have you tried Lactulose

[Sydney04]

Yeah it does, it's really good. Don't take lactulose it's really bad for your system.

[AyrshireK in reply to Sydney04]

I think we need to use caution when using sweeping statements that any medication is 'really bad for your system'. The first line treatment for Hepatic Encephalopathy symptoms is lactulose and most folk are started on it and then if need be rifaximin added. Rifaximin in combination with lactulose is now the most common means of treating HE. A lot of folks on here are on it and like my hubby for some time (April 2012) and whilst it has some unfortunate side effects like the sudden and unannounced toilet urge it is also playing a role in keeping his HE symptoms on the minor side so hasn't proved at all bad for his system.

Katie

[Elric1 in reply to AyrshireK]

Thanks I'm listening you're all ace

[Elric1 in reply to Sydney04]

Thanks very much nice one

[Sydney04]

Sorry but have you taken lactulose? With all due respect I understand your husband has liver problems but unless you've actually been in hospital and physically suffered the side effects I think I can make that comment. I've seen alot of your comments and you're an extremely knowledgeable lady but I've expressed my opinion and it comes with a caveat - it's my opinion through actual physical experience.

[Laura009 in reply to Sydney04]

My husband was on lactulose from day 1 of his diagnosis of alcoholic cirrhosis and suffered absolutely no side effects from it at all. It kept HE under control, never caused 💩problems, merely softened it slightly to avoid straining. Lactulose was the 1 med he didnt have to take another med to stop any side effects for

[Sydney04 in reply to Laura009]

I was given it in hospital and it was the most unpleasant thing - absolutely awful. I couldn't walk as I caught guillain-barre in hospital so every time I had to go to the toilet which was about every 5 minutes I had to get help to get there and get assistance so I think that made what was at best unpleasant an even worse experience!

I knew Rifaximin was expensive but once I knew I could take it with no side effects I just flat out refused to take lactulose.

[Sydney04]

I work for the NHS by the way.

[Elric1 in reply to Sydney04]

Thanks a lot really appreciate you're honesty