Hi

[Alley27]

Hi update on ECG...it was normal. I have the raised blood pressure, today my speech has been slow and I have had to think before I speak. My head aches and feels Foggy and a little dizzy if I move my head a little too quick, serious fatigue, I am falling asleep.

Its maddening because feel unable to do anything...I have to laugh though or would cry.

I did say to the gp that I was sure it wasn't my heart and that it's my liver I think portal vein, my head is also related.

I feel drunk sometimes lol, wouldn't mind, but I am t total..never drink.

I have been taken off all medication except budesonide until I see the consultant on 30th. I thought it was the mycophenolate that was causing the problems. I feel better to some extent, since dropping the mycophenolate.

The recent bloating, nausea, head issues and blood pressure, not to mention the pain in my joints are much worse this past 7 months. I just don't know what is going on and it needs sorting out.

Any advice welcome xx

[Hidden]

Hi Alley,

How is your AIH/PBC affecting your liver? have you got any fibrosis or cirrhosis? Have you discussed your symptoms of 'feeling drunk' and 'foggy' with your consultant?

Have you ever been assessed for Hepatic encephalopathy (HE)? Sorry lots of questions!

HE refers to changes in the brain that occur in patients with advanced, acute (sudden) or chronic (long-term) liver disease.

britishlivertrust.org.uk/in...

We are certainly not diagnosing you, but it may be a good idea to discuss your symptoms and assessment for HE with your own doctors as soon as possible. Can you get to the doctors today?

Wishing you well

Trust1