Never been happier : Hi everyone, The... - British Liver Trust

British Liver Trust
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Never been happier

Maxey666
Maxey666
84 Replies

Hi everyone,

The doctors and surgeons have just been to see me on there rounds and are all happy to discharge me after lunch tomorrow. I CANNOT BELIEVE IT 8 days ahead of schedule.

84 Replies
oldestnewest
Trust1
Trust1Administrator

Brilliant news!

4 likes
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Maxey666
Maxey666
in reply to Trust1

I know. Its still sinking in. I asked Professor Alberto Sanchez if I could kiss him, he laughed.

9 likes
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Laura009
Laura009
in reply to Maxey666

That is fantastic news Maxey .... how amazing, you must have an incredible new liver, the best team looking after you and a great positive attitude. All the very best for your future happiness and good health xxxx

6 likes
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chugalong
chugalong
in reply to Maxey666

🤣🤣🤣

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alfredthegreat

Great news Maxey.

There's no place like home!

Look after yourself and NOOOOOOOOOO lifting!!

All the best to you.

Alf.

7 likes
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Maxey666

Thanks Alf and definitely no lifting

5 likes
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alfredthegreat

Hey! No hoovering for 6 months either! :-) :-)

5 likes
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Maxey666

Yes sir

5 likes
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Filistines

Why would he ever hoover? :-) :-) :-)

1 like
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Maxey666
Maxey666
in reply to Filistines

Too right

1 like
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Filistines
Filistines
in reply to Maxey666

Respect for your honesty!! :-)

1 like
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alfredthegreat

My wife laughed when they told me that. I can't think why? :-) :-)

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Filistines

Payback, innit? :-) !!

1 like
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Trust9
Trust9Administrator

Good afternoon Maxey66,

Fantastic news !

Take good care of yourself once home.

Best wishes,

Trust9

5 likes
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Ofeckman

Maxey million. 👍

5 likes
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Mama41

Fantastic news xx

4 likes
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Bootandall

Awesome, take care you don't overdo it. Mind boggles if you think too much about it! So very happy for you my friend. xx

7 likes
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Popel
Popel
in reply to Bootandall

nice to see you back on Here. As I was Wondering where you went. Paul

1 like
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Bootandall
Bootandall
in reply to Popel

Hey Paul, sorry I missed your message. It is nice to hear from you as well. x

1 like
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Bbsmom

That’s the way to do it my friend, I told ye you could smash this, so sooooo so proud of you, do you think They should prescribe doses on “me” on the NHS as a wonder drug for surgery patients lol 😆😉🤔Seriusly thought you did this all yourself my lovely, power of a positive mind and mind over matter will win through every time. you rocked this Maxey matey and I could not BE more proud of you, love n light Eilish xxx

8 likes
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Maxey666
Maxey666
in reply to Bbsmom

Thanks Eilish and me of you too. You were real tonic to me whilst on Todd ward. Much love xx

9 likes
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Bbsmom
Bbsmom
in reply to Maxey666

Its ALL about spreading the love joy and positivity my pet xx

7 likes
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Oldham12
Oldham12
in reply to Bbsmom

Hi

How are you feeling tonight ? Are you home now? Love and hugs Lynne xxxx

1 like
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Bbsmom
Bbsmom
in reply to Oldham12

Hi sweetie, I'm in the local hospital back in Belfast, despite diabetes being very well controlled pre surgery the steroids have sent it haywire n I've been started on insulin..so keeping me in yp stsbalise dosage n observation for few days ..but as far as liver goes, surgeons never been happier xxx hope all well with you too xx

4 likes
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Maxey666
Maxey666
in reply to Bbsmom

That's great news. You'll be home in no time xx

2 likes
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Oldham12
Oldham12
in reply to Bbsmom

You've done so well and you will be home soon. Love and hugs Lynne xxxx

2 likes
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Maxey666
Maxey666
in reply to Oldham12

Thanks Lynne x

1 like
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Steak
Steak
in reply to Bbsmom

Hi i became diabetic after transplant and had to go on insulin after my high blood sugars. Came off insulin when steriods stopped but after getting cmv infection and steriods starting again now back on insulin hopefully as teriods stop again will come off insulin again. Those pesky steriods have alot 2 answer 4 ha.

1 like
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joeburger
joeburger
in reply to Steak

Same here I was diabetic before transplant but steroids sent my blood sugars up with the gods got them sorted after a long while now I have nerve damage . I too got cmv, back in hospital for 10 days back on steroids and 2st heavier. Not best pleased ! Hopefully you can get off the insulin again. Good luck.

1 like
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Steak
Steak
in reply to joeburger

Yes once I get off steriods hopefully insulin will stop. I was on 10mg of prednisolone now on 5mg they don't put weight on me just send blood sugars haywire.

1 like
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Bbsmom
Bbsmom
in reply to Steak

Hi steak and thanks for this reassurance ..my hba1c was NEVER above 7 in my life pre transplant, post on taking steroids it had bern shooting up to and spiking at 26 😥👿🤬 but they are watching my sugars n adjusting insulin so now a much more manageable 17 r below, still too high but better than they were by far. As my liver disease is auto immune PBC I will remain 9n steroids 5-7.5 mg of prednisolone for the rest of my days so I guess they will watch and wait n see how things settle. God to know you had similiar issue..well NOT GOOD as such but reassuring that it can happen..continued good health to you and thanks again for the reply xx

2 likes
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Braveheart65
Braveheart65
in reply to Bbsmom

In a fit of pure selfishness, could you please make sure you are close by to me when my turn comes 🙏 xxx

4 likes
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Bbsmom
Bbsmom
in reply to Braveheart65

I will fly to your very side the minute you call me braveheart my love you just say the word lol xxx much love hang on in there xxx 😘😘😘

2 likes
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Wass71

Wow, you are a superman!! Such lovely, great news for you and your family. Take it easy.

Best wishes

Wass x

6 likes
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Maxey666
Maxey666
in reply to Wass71

Thanks Wass. All came as a bit of a shock really.

3 likes
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Filistines
Filistines
in reply to Maxey666

You are superman Maxey. I wonder how on earth your head has been able to catch up with all you have been through! Love and best wishes from Phyllis x

1 like
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Oldham12

Wow!!

I'm so so pleased for you. You are an inspiration to us all. Please rest when you get home. What a wonderful Christmas you will have. Love and hugs to you and yours Lynne xxxx

4 likes
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Countrywalks

Cant believe your going home your just amazing its fantastic back home with your family where you belong . All the luck in the world to you xx

3 likes
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Maxey666

Thanks Judy. Will be in touch over the weekend xx

1 like
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Smyally

Great news Maxey, your smashing it. Remember though to take it easy when you get home xx

4 likes
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ShropshireLass2019

Good Morn Maxey

Yipeee! 🎊🎈Such wonderful and amazing news to hear.

My fingers are crossed that your exit from the hospital is a pleasant and comfortable one!

All the best and I look forward to reading whatever antics you and Eilish shall be upto over the coming months !

Be good and no lifting ......

Loads of love, hugs along with a speedy return home to fluffy pillows 😁

Trish ❤

3 likes
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Maxey666

Thanks Trish x

1 like
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Beture47

Fantastic news.

Take it easy when you get home

Best wishes

Elizabeth

3 likes
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Robbie21

So pleased for you. You are an inspiration. Fantastic that you are ahead of schedule. Keep the faith x

3 likes
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Braveheart65

Unbelievable! Better than winning any lottery. Stay strong and healthy my friend!

PS, thank goodness I was sitting down when I read this, it was a complete shock, it the nicest possible way x

4 likes
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Huggy7614

Bleary eyed I looked at health unlocked, then woke with start!! What?? Maxey’s coming out?? Already??

Well done - to both of you, now do take it easy, I suspect you will. It gets better every day!! Well done. Andy

6 likes
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Maxey666
Maxey666
in reply to Huggy7614

Thanks Andy. Small walks,netflix and plenty of rest lies ahead.

4 likes
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mattymoo33

So pleased for you Maxxey. 😴😴😴😴

4 likes
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david5354

Absolutely fantastic, take it easy let you self build your strength back.

Then plan you next holiday!

David

5 likes
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Maxey666
Maxey666
in reply to david5354

Sounds like a good plan David. I've always wanted to go to Japan. In a couple of years I think.

3 likes
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Huggy7614
Huggy7614
in reply to Maxey666

Sorry mate, while you were in hosp, England have left Japan!! No need to go there now!!!

2 likes
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Maxey666
Maxey666
in reply to Huggy7614

Oh ok lol

2 likes
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Bootandall
Bootandall
in reply to Maxey666

😂😂😂

Sorry, that was meant for Andy!

1 like
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david5354

I went on my first full holiday this year, 15 months post transplant it was a great feeling to be back to normal.

I went away for a short break after 7 months. It took 6 months to get the insurance

4 likes
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Steak

U have done really well take it easy remember baby steps. 7 was ur Lucky number. Onwards and upwards now .

1 like
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Maxey666
Maxey666
in reply to Steak

Thanks Steak. Bit of a shock really.

1 like
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Steak
Steak
in reply to Maxey666

I bet it was but u have a new liver now so worth all those other calls that didn't go ahead. It had 2 be the right liver and now it's happened so glad for u and family. I was told that u don't realise how ill u were before transplant the tiredness etc. I was extremely jaundiced b4 my transplant hrs after my son cudnt get over how my eyes were much clearer. My bilirubin was about 166 and after op was down in the 20s and now it's about 6. X

1 like
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Maxey666
Maxey666
in reply to Steak

I didn't really have any jaundice throughout really and I was extremely lucky with underlying HE but I felt constantly rinsed out , energy first thing in the morning but that didn't seem to last. Everything was a frustrating challenge. Interestingly my wife told me that I now smell like her husband again. She described me,my bedroom ,bed llinin and clothes having a sort of sweet smell but not offensive. She didn't want to tell me pre TP

Tell me, when was your transplant and how have you been since?

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Steak
Steak
in reply to Maxey666

Coming up to 7 months this month. Been good until I got the cmv infection recently spent a week in chorley hospital adjusted my meds and was on an antibiotic drip 4 a few days. Now cmv is negative.

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Robbie21
Robbie21
in reply to Maxey666

Hi Maxey,

my husband had had that sweet smell to the bed linen,.etc. I was told that it was the by products as the body autodigested when you went in the decompensated phase. It is an odd smell ,it occurs overnight when the body needs carbs to breakdown into glycogen.

Funnily that you lost made me think of this. I now look forward to a time when that smell is no longer there as he had his transplant last Monday.

Most importantly well done on your phenominal recovery.

Take Care

Marie

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Maxey666
Maxey666
in reply to Robbie21

Thanks Marie

All the best to your husband

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joeburger

FANTASTIC !

1 like
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davianne

Awww Max, that's really Great News. You've obviously been a model patient, and earnt a lot of brownie points🤣🤣🤣

I am so so happy for you. After all those false starts, you finally won the race👍👍👍. Just take it easy when you get home, and let nature take its course.

I wish you a very healthy, happy future with your family.... onwards and upwards from now on😁😁😁.

David

2 likes
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Maxey666
Maxey666
in reply to davianne

Many thanks David

1 like
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davianne
davianne
in reply to Maxey666

You deserve it Max 👍👍👍

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Popel

Hi maxy I knew you’d get there.i haven’t replied to anyone for a while and just noticed you’ve finally had your TP and I’m so pleased for you after all you’ve been through. So congratulations and welcome to the second chance club. Paul

4 likes
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Maxey666
Maxey666
in reply to Popel

The second chance club indeed. Cheers Paul

1 like
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Peppy05

Great news Maxey666

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Jaycee19

Wow such fabulous news Maxey.

Take it easy now.

So many lovely replies as well.

What an awesome site this is.

We are all so thrilled for you.

Well done !!!

Jaycee

2 likes
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Maxey666
Maxey666
in reply to Jaycee19

Thanks Jaycee

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Beefeater
Beefeater
in reply to Maxey666

Maxey: how long did you wait for the transplant? And how long was surgery?

I’m too curious. Beef

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Maxey666
Maxey666
in reply to Beefeater

Hi Beef

I was listed on 25th July called 7 times and done on the 26th Oct surgery took around 6 plus hours

1 like
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Beefeater

So happy for you, Maxey!! Get plenty of rest and enjoy the new life you’re so blessed with. Beefeater

2 likes
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Maxey666
Maxey666
in reply to Beefeater

Cheers Beef

1 like
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Dannythedog

Excellent news Maxey!! 🤗

2 likes
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Maxey666

Thanks.

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Millie2014

That's great news maxey. All the very best to you!

2 likes
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Bbsmom

What's todays update Maxey .....I'm still confined to quarters in RVH ...whats happening with you chum xx

2 likes
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ThreeSmiles

A very belated brill absolutely brill Max. Like your next short and long terms aims - sound good plans 😀😁😃

3 likes
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Steak

Hi just wondering how u r doing now u r home.

1 like
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Maxey666

That's kind of you Steak.

I'm doing really well thanks. I feel 20 years younger. I had no idea I would feel this amazing after transplant but I guess it just signifies how crap I felt/was.

Still got plenty of healing ahead of me and weekly bloods at Kings. To be honest I feel like a new man. Hope alls good with you my friend.

Max

1 like
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alfredthegreat

Great to hear that news Maxey :-) :-) :-) Hope you continue to go from strength to strength!

Best wishes.

Alf.

1 like
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Maxey666

Many thanks Alf.

Hope you are well and enjoying some nice walks.

Max.

1 like
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alfredthegreat

Thanks maxey.

Few steps backwards to do with back and joints but will be back striding out again soon I'm sure :-) :-)

Alf

1 like
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