Never been happier : Hi everyone, The... - British Liver Trust

British Liver Trust

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Never been happier

Maxey666 profile image
84 Replies

Hi everyone,

The doctors and surgeons have just been to see me on there rounds and are all happy to discharge me after lunch tomorrow. I CANNOT BELIEVE IT 8 days ahead of schedule.

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Maxey666 profile image
Maxey666
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84 Replies

Brilliant news!

Maxey666 profile image
Maxey666 in reply to

I know. Its still sinking in. I asked Professor Alberto Sanchez if I could kiss him, he laughed.

Laura009 profile image
Laura009 in reply to Maxey666

That is fantastic news Maxey .... how amazing, you must have an incredible new liver, the best team looking after you and a great positive attitude. All the very best for your future happiness and good health xxxx

chugalong profile image
chugalong in reply to Maxey666

🤣🤣🤣

alfredthegreat profile image
alfredthegreat

Great news Maxey.

There's no place like home!

Look after yourself and NOOOOOOOOOO lifting!!

All the best to you.

Alf.

Maxey666 profile image
Maxey666 in reply to alfredthegreat

Thanks Alf and definitely no lifting

alfredthegreat profile image
alfredthegreat in reply to Maxey666

Hey! No hoovering for 6 months either! :-) :-)

Maxey666 profile image
Maxey666 in reply to alfredthegreat

Yes sir

in reply to alfredthegreat

Why would he ever hoover? :-) :-) :-)

Maxey666 profile image
Maxey666 in reply to

Too right

in reply to Maxey666

Respect for your honesty!! :-)

alfredthegreat profile image
alfredthegreat in reply to

My wife laughed when they told me that. I can't think why? :-) :-)

in reply to alfredthegreat

Payback, innit? :-) !!

Good afternoon Maxey66,

Fantastic news !

Take good care of yourself once home.

Best wishes,

Trust9

Maxey million. 👍

Mama41 profile image
Mama41

Fantastic news xx

Bootandall profile image
Bootandall

Awesome, take care you don't overdo it. Mind boggles if you think too much about it! So very happy for you my friend. xx

Popel profile image
Popel in reply to Bootandall

nice to see you back on Here. As I was Wondering where you went. Paul

Bootandall profile image
Bootandall in reply to Popel

Hey Paul, sorry I missed your message. It is nice to hear from you as well. x

Bbsmom profile image
Bbsmom

That’s the way to do it my friend, I told ye you could smash this, so sooooo so proud of you, do you think They should prescribe doses on “me” on the NHS as a wonder drug for surgery patients lol 😆😉🤔Seriusly thought you did this all yourself my lovely, power of a positive mind and mind over matter will win through every time. you rocked this Maxey matey and I could not BE more proud of you, love n light Eilish xxx

Maxey666 profile image
Maxey666 in reply to Bbsmom

Thanks Eilish and me of you too. You were real tonic to me whilst on Todd ward. Much love xx

Bbsmom profile image
Bbsmom in reply to Maxey666

Its ALL about spreading the love joy and positivity my pet xx

in reply to Bbsmom

Hi

How are you feeling tonight ? Are you home now? Love and hugs Lynne xxxx

Bbsmom profile image
Bbsmom in reply to

Hi sweetie, I'm in the local hospital back in Belfast, despite diabetes being very well controlled pre surgery the steroids have sent it haywire n I've been started on insulin..so keeping me in yp stsbalise dosage n observation for few days ..but as far as liver goes, surgeons never been happier xxx hope all well with you too xx

Maxey666 profile image
Maxey666 in reply to Bbsmom

That's great news. You'll be home in no time xx

in reply to Bbsmom

You've done so well and you will be home soon. Love and hugs Lynne xxxx

Maxey666 profile image
Maxey666 in reply to

Thanks Lynne x

Steak profile image
Steak in reply to Bbsmom

Hi i became diabetic after transplant and had to go on insulin after my high blood sugars. Came off insulin when steriods stopped but after getting cmv infection and steriods starting again now back on insulin hopefully as teriods stop again will come off insulin again. Those pesky steriods have alot 2 answer 4 ha.

joeburger profile image
joeburger in reply to Steak

Same here I was diabetic before transplant but steroids sent my blood sugars up with the gods got them sorted after a long while now I have nerve damage . I too got cmv, back in hospital for 10 days back on steroids and 2st heavier. Not best pleased ! Hopefully you can get off the insulin again. Good luck.

Steak profile image
Steak in reply to joeburger

Yes once I get off steriods hopefully insulin will stop. I was on 10mg of prednisolone now on 5mg they don't put weight on me just send blood sugars haywire.

Bbsmom profile image
Bbsmom in reply to Steak

Hi steak and thanks for this reassurance ..my hba1c was NEVER above 7 in my life pre transplant, post on taking steroids it had bern shooting up to and spiking at 26 😥👿🤬 but they are watching my sugars n adjusting insulin so now a much more manageable 17 r below, still too high but better than they were by far. As my liver disease is auto immune PBC I will remain 9n steroids 5-7.5 mg of prednisolone for the rest of my days so I guess they will watch and wait n see how things settle. God to know you had similiar issue..well NOT GOOD as such but reassuring that it can happen..continued good health to you and thanks again for the reply xx

Braveheart65 profile image
Braveheart65 in reply to Bbsmom

In a fit of pure selfishness, could you please make sure you are close by to me when my turn comes 🙏 xxx

Bbsmom profile image
Bbsmom in reply to Braveheart65

I will fly to your very side the minute you call me braveheart my love you just say the word lol xxx much love hang on in there xxx 😘😘😘

Wass71 profile image
Wass71

Wow, you are a superman!! Such lovely, great news for you and your family. Take it easy.

Best wishes

Wass x

Maxey666 profile image
Maxey666 in reply to Wass71

Thanks Wass. All came as a bit of a shock really.

in reply to Maxey666

You are superman Maxey. I wonder how on earth your head has been able to catch up with all you have been through! Love and best wishes from Phyllis x

Wow!!

I'm so so pleased for you. You are an inspiration to us all. Please rest when you get home. What a wonderful Christmas you will have. Love and hugs to you and yours Lynne xxxx

Countrywalks profile image
Countrywalks

Cant believe your going home your just amazing its fantastic back home with your family where you belong . All the luck in the world to you xx

Maxey666 profile image
Maxey666 in reply to Countrywalks

Thanks Judy. Will be in touch over the weekend xx

Smyally profile image
Smyally

Great news Maxey, your smashing it. Remember though to take it easy when you get home xx

Good Morn Maxey

Yipeee! 🎊🎈Such wonderful and amazing news to hear.

My fingers are crossed that your exit from the hospital is a pleasant and comfortable one!

All the best and I look forward to reading whatever antics you and Eilish shall be upto over the coming months !

Be good and no lifting ......

Loads of love, hugs along with a speedy return home to fluffy pillows 😁

Trish ❤

Maxey666 profile image
Maxey666 in reply to

Thanks Trish x

Beture47 profile image
Beture47

Fantastic news.

Take it easy when you get home

Best wishes

Elizabeth

Robbie21 profile image
Robbie21

So pleased for you. You are an inspiration. Fantastic that you are ahead of schedule. Keep the faith x

Braveheart65 profile image
Braveheart65

Unbelievable! Better than winning any lottery. Stay strong and healthy my friend!

PS, thank goodness I was sitting down when I read this, it was a complete shock, it the nicest possible way x

Huggy7614 profile image
Huggy7614

Bleary eyed I looked at health unlocked, then woke with start!! What?? Maxey’s coming out?? Already??

Well done - to both of you, now do take it easy, I suspect you will. It gets better every day!! Well done. Andy

Maxey666 profile image
Maxey666 in reply to Huggy7614

Thanks Andy. Small walks,netflix and plenty of rest lies ahead.

mattymoo33 profile image
mattymoo33

So pleased for you Maxxey. 😴😴😴😴

Absolutely fantastic, take it easy let you self build your strength back.

Then plan you next holiday!

David

Maxey666 profile image
Maxey666 in reply to

Sounds like a good plan David. I've always wanted to go to Japan. In a couple of years I think.

Huggy7614 profile image
Huggy7614 in reply to Maxey666

Sorry mate, while you were in hosp, England have left Japan!! No need to go there now!!!

Maxey666 profile image
Maxey666 in reply to Huggy7614

Oh ok lol

Bootandall profile image
Bootandall in reply to Maxey666

😂😂😂

Sorry, that was meant for Andy!

I went on my first full holiday this year, 15 months post transplant it was a great feeling to be back to normal.

I went away for a short break after 7 months. It took 6 months to get the insurance

Steak profile image
Steak

U have done really well take it easy remember baby steps. 7 was ur Lucky number. Onwards and upwards now .

Maxey666 profile image
Maxey666 in reply to Steak

Thanks Steak. Bit of a shock really.

Steak profile image
Steak in reply to Maxey666

I bet it was but u have a new liver now so worth all those other calls that didn't go ahead. It had 2 be the right liver and now it's happened so glad for u and family. I was told that u don't realise how ill u were before transplant the tiredness etc. I was extremely jaundiced b4 my transplant hrs after my son cudnt get over how my eyes were much clearer. My bilirubin was about 166 and after op was down in the 20s and now it's about 6. X

Maxey666 profile image
Maxey666 in reply to Steak

I didn't really have any jaundice throughout really and I was extremely lucky with underlying HE but I felt constantly rinsed out , energy first thing in the morning but that didn't seem to last. Everything was a frustrating challenge. Interestingly my wife told me that I now smell like her husband again. She described me,my bedroom ,bed llinin and clothes having a sort of sweet smell but not offensive. She didn't want to tell me pre TP

Tell me, when was your transplant and how have you been since?

Steak profile image
Steak in reply to Maxey666

Coming up to 7 months this month. Been good until I got the cmv infection recently spent a week in chorley hospital adjusted my meds and was on an antibiotic drip 4 a few days. Now cmv is negative.

Robbie21 profile image
Robbie21 in reply to Maxey666

Hi Maxey,

my husband had had that sweet smell to the bed linen,.etc. I was told that it was the by products as the body autodigested when you went in the decompensated phase. It is an odd smell ,it occurs overnight when the body needs carbs to breakdown into glycogen.

Funnily that you lost made me think of this. I now look forward to a time when that smell is no longer there as he had his transplant last Monday.

Most importantly well done on your phenominal recovery.

Take Care

Marie

Maxey666 profile image
Maxey666 in reply to Robbie21

Thanks Marie

All the best to your husband

joeburger profile image
joeburger

FANTASTIC !

davianne profile image
davianne

Awww Max, that's really Great News. You've obviously been a model patient, and earnt a lot of brownie points🤣🤣🤣

I am so so happy for you. After all those false starts, you finally won the race👍👍👍. Just take it easy when you get home, and let nature take its course.

I wish you a very healthy, happy future with your family.... onwards and upwards from now on😁😁😁.

David

Maxey666 profile image
Maxey666 in reply to davianne

Many thanks David

davianne profile image
davianne in reply to Maxey666

You deserve it Max 👍👍👍

Popel profile image
Popel

Hi maxy I knew you’d get there.i haven’t replied to anyone for a while and just noticed you’ve finally had your TP and I’m so pleased for you after all you’ve been through. So congratulations and welcome to the second chance club. Paul

Maxey666 profile image
Maxey666 in reply to Popel

The second chance club indeed. Cheers Paul

Peppy05 profile image
Peppy05

Great news Maxey666

Wow such fabulous news Maxey.

Take it easy now.

So many lovely replies as well.

What an awesome site this is.

We are all so thrilled for you.

Well done !!!

Jaycee

Maxey666 profile image
Maxey666 in reply to

Thanks Jaycee

Beefeater profile image
Beefeater in reply to Maxey666

Maxey: how long did you wait for the transplant? And how long was surgery?

I’m too curious. Beef

Maxey666 profile image
Maxey666 in reply to Beefeater

Hi Beef

I was listed on 25th July called 7 times and done on the 26th Oct surgery took around 6 plus hours

Beefeater profile image
Beefeater

So happy for you, Maxey!! Get plenty of rest and enjoy the new life you’re so blessed with. Beefeater

Maxey666 profile image
Maxey666 in reply to Beefeater

Cheers Beef

Dannythedog profile image
Dannythedog

Excellent news Maxey!! 🤗

Maxey666 profile image
Maxey666 in reply to Dannythedog

Thanks.

Millie2014 profile image
Millie2014

That's great news maxey. All the very best to you!

Bbsmom profile image
Bbsmom

What's todays update Maxey .....I'm still confined to quarters in RVH ...whats happening with you chum xx

ThreeSmiles profile image
ThreeSmiles

A very belated brill absolutely brill Max. Like your next short and long terms aims - sound good plans 😀😁😃

Steak profile image
Steak

Hi just wondering how u r doing now u r home.

Maxey666 profile image
Maxey666

That's kind of you Steak.

I'm doing really well thanks. I feel 20 years younger. I had no idea I would feel this amazing after transplant but I guess it just signifies how crap I felt/was.

Still got plenty of healing ahead of me and weekly bloods at Kings. To be honest I feel like a new man. Hope alls good with you my friend.

Max

alfredthegreat profile image
alfredthegreat in reply to Maxey666

Great to hear that news Maxey :-) :-) :-) Hope you continue to go from strength to strength!

Best wishes.

Alf.

Maxey666 profile image
Maxey666 in reply to alfredthegreat

Many thanks Alf.

Hope you are well and enjoying some nice walks.

Max.

alfredthegreat profile image
alfredthegreat

Thanks maxey.

Few steps backwards to do with back and joints but will be back striding out again soon I'm sure :-) :-)

Alf

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