Good news : Morning all Just an update... - British Liver Trust

British Liver Trust

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Good news

Frananncru profile image
14 Replies

Morning all

Just an update , saw consultant yesterday , first appointment since diagnosis of cirrhosis a couple of months ago .

Best news under the circumstancesI have early cirrhosis (stage one) and none alcoholic fatty liver disease .

Liver not really enlarged so still no explanation for the pain I experience.

Need to have endoscopy to check for varices ,this fills me with more dread and fear than the liver biopsy ,but I understand the importance of knowing if I have varices .

Following discussion with consultant suggested I might tolerate the nasal approach endoscopy , so that’s what I’m going with and with sedation .

Anyone had experience of this nasal approach?

If all is well , been advised to continue with positive life style changes and will need Ultra sound scan every 6 months and annual consultant review .

Hoping you all are as well as you can be .

Regards

Fran

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Frananncru profile image
Frananncru
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14 Replies

Hi Fran,

Welcome to the forum where we hope you will find support and understanding from our great members.

Don't forget there is a lot of information about Cirrhosis on our website and if you are in the UK you can phone our helpline for a chat Monday to Friday 10am to 15.00 on 0800 652 7330

Warm wishes

Trust1

ThreeSmiles profile image
ThreeSmiles in reply to

Hi Trusty1

Fran has posted quite a lot in the past and profile says UK. Nevertheless a warm welcome 👍 from you.

in reply toThreeSmiles

Sorry Fran! the profile came up as a new member. Old or new you are welcome! :)

Frananncru profile image
Frananncru in reply to

Thanks , I wondered what had happened ... technology has never been my friend lol !

Based on my experience there's no need to dread an endoscopy. I've had an endoscopy & colonoscopy. Both procedures were done together & because they were done under general anaesthetic it was not uncomfortable at all. After waking from the anaesthetic & resting for a couple of hours I went home & resumed living normally with no memory of the procedures & no after effects.

I needed the colonoscopy because I burst a blood vessel & bled from my back passage while straining due to being persistently constipated. The colonoscopy was precautionary to check for colon cancer & there was no sign of this found.

In retrospect the endoscopy wasn't necessary. The specialist routinely performed an endoscopy as well as a colonoscopy with all his patients who really only needed one of the procedures because it was a lucrative source of income paid for by Medicare!

Based on the following quote your long term outlook is positive provided you follow a healthy lifestyle avoiding liver stressors like alcohol, drugs etc.

Dr. Melissa Palmer's Guide To Hepatitis and Liver Disease:

'People with compensated cirrhosis often live a normal life span with relatively few health-related consequences due to cirrhosis.'

Frananncru profile image
Frananncru in reply to

Thanks , just hope for a good dose of sedation .

Pheebe profile image
Pheebe in reply to

I'm glad to read this as I have late stage PBC with cirrhosis (compensated) The 2 main symptoms are ITCH and very enlarged liver. (22cm)

Bungalow68 profile image
Bungalow68

Glad you got good news. I see my consultant end of November hope i hear what stage my liver is xx

Frananncru profile image
Frananncru in reply toBungalow68

Good luck

popupstands profile image
popupstands

There are better ways than biopsy which can give false readings why don’t you ask for fibroscan

Frananncru profile image
Frananncru in reply topopupstands

Thanks for your reply ... endoscopy is the only investigation left to have ,I’m resigned to getting it done and moving on .

Katiesgran profile image
Katiesgran in reply toFrananncru

Don’t worry about the endoscopy. I was frantic before I had mine but with sedation I have absolutely no memory of it being done and the bonus that no sign of varices and doesn’t need repeating for three years. Wishing you luck.

Frananncru profile image
Frananncru in reply toKatiesgran

Thanks , I know it’s necessary , but it’s always been a procedure I have said I would never have ,but I realise it’s important to have it done . Bring on extra sedation , Just received an appointment for early December . So will try not to dwell on it .lol , thanks Again . Fran

Hope1011 profile image
Hope1011

Hi Fran, that’s excellent news. Very happy for you.

Are you on any medication? I have stage 1 cirrhosis (non alcoholic. AIH.

I been taking steroids for few years now:(

TC

Hope

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