So very sorry to hear that news, it's a great pity they don't assess people earlier in their journeys and keep a close eye on them so that it doesn't reach this stage.
Have you had a read at the BLT page on planning for the future as it is a great source of information when palliative care options are coming into play. britishlivertrust.org.uk/li...
Thoughts very much with both of you, look after yourself.
I wouldn't give up yet I seen he hasn't long been out of icu, I was in a coma and it took me 18 months to get over that I am surprised they have assessed him so soon... Maybe once he regains some strength you could pursue an assessment again no harm in asking x
Hi Dawn. 5 years ago I was given 5-6 month to live without treatment (liver cancer) and no hope of a transplant because I had what was termed as multiple tumours on my liver and so I didn't reach the criteria for transplant. I was told that if I were to go on a chemotherapy trial TACE2 and I were to respond to treatment then I could possibly live 18 months or maybe even longer. To cut a long story short, after 3 years of chemotherapy that knocked me for 6 and left me incredibly weak and muscle wasted, I entered liver failure. Then I was put forward at the 11th hour for transplant and told I would only have a 30% chance of getting one. Well here I am, against all odds, one year post transplant and feeling well for the first time in years. Never give up! The body can be very surprising, as in my case and in jojo's case. I sincerely hope that he starts to gain strength again and rallies round. Wishing you and hoping for you both, all the very best. Alf
Aww Dawn, so so sad. I hope you glean a glimmer of hope from what alfred and jojo have said.
To be honest I don’t think there are any/many of us who are in a worse situation than you find yourselves in, so don’t worry about “moaning” which you’re not. You’re just stating very sad facts.
You know what struck me about your post - the last sentence when you said there are people worse off, and no point to moan. Such a fantastic attitude to have, but I do feel for you both!! Be strong, and remember Alf’s wise words. Never give up!! Andy.
There isn't much else that can add to the advice given here but I would just like to to say that you are both in my thoughts and prayers. Love and hugs to you both Lynne xxxx
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