Just Diagnosed With Fibrosis Stage 2..

[IVIatthew]

I was having stomach pain had an ultrasound and Fibroscan, was diagnosed with liver Fibrosis stage 2 last week also a liver cyst and a gallbladder sludge ball or polyp, also some RBC blood in my urine which they thought was a Kidney Stone but did not see one, also CT scans all were fine, doc wants me to do a clinical trial in her office which I probably wont, other than that no meds have been subscribed for me. Have no idea how to deal with this.. Have had a fatty liver for many years now, used to be a drinker but not in a while and never will again..I have posted my test results below, If anyone would like to see them.. My liver blood labs have for the most part been in normal ranges for years now, with the occasional lab being off very rarely and not by much..id say maybe 3 times in a year, but for the most part all fine.. Just had a test for Hepatitis this year which came back negative.. I dont know what steps to take next.. Maybe a second opinion? Here are the test results..... I am really scared and feel like I have been handed a death sentence..thats how scared I am..

FibroScan (Done Today) (91200)

Result: fibroscan measurements: Yes; fibroscan variability: Yes; fibroscan wave margins: Yes; fibroscan CAP: 300 db/M; fibroscan stiffness: 7.7 kPa; fibroscan F score: F2; fibroscan steatosis: S3

Latest blood test:

Component Results

ComponentYour ValueStandard Range

Albumin5.3 g/dL3.5 - 5.7 g/dL

Total Bilirubin1.2 mg/dL0.3 - 1.0 mg/dL

Bilirubin, Direct0.2 mg/dL0.0 - 0.2 mg/dL

R-Specimen has low level of hemolysis which may impact accuracy of DBil results. Please take this into consideration when using this information for clinical decisions.

Alkaline Phosphatase66 IU/L34 - 104 IU/L

Total Protein8.0 g/dL6.4 - 8.9 g/dL

AST24 IU/L13 - 39 IU/L

R-Specimen has low level of hemolysis which may impact accuracy of AST results. Please take this into consideration when using this information for clinical decisions.

ALT18 IU/L7 - 52 IU/L

CT ABD / PELVIS W CONTRAST - DetailsPrinter friendly page--New window will open

About This Test

Details

Study Result

Impression

No acute abnormality. Stable L5 spondylolisthesis.

West Reading Radiology Associates

Dictation By:

Brent Wagner, MD

This report has been electronically signed by:

Brent Wagner, MD

4/8/2019 2:09 PM

Narrative

CLINICAL HISTORY: Right lower quadrant abdominal pain.

COMPARISON: 10/7/09.

TECHNIQUE: Images were obtained after intravenous contrast. The CT was performed using one or more of the following dose reduction techniques: Automated exposure control, adjustment of the mA and/or kV according to patient size, or use of iterative reconstruction technique.

FINDINGS:

There is no obstruction or free air. The lung bases show no significant abnormality. There is no significant abnormality of the liver, pancreas, spleen, or adrenal glands. The aorta is not aneurysmal. The kidneys show no hydronephrosis or significant mass lesion.

There is mild sigmoid diverticulosis without evidence for acute diverticulitis. The bladder is normal. There is no ascites or mass lesion. The appendix is normal.

There is minimal L5 anterolisthesis as a result of bilateral spondylolysis (pars defects); the findings are stable compared to a lumbar spine radiograph 2/8/18.

Ultrasound:

US ABDOMEN COMPLETE - DetailsPrinter friendly page--New window will open

About This Test

Details

Study Result

Impression

Hepatic steatosis.

1.9 mm gallbladder polyp versus sludge ball.

West Reading Radiology Associates

Dictation By:

Abin Bandyopadhyay, MD

This report has been electronically signed by:

Abin Bandyopadhyay, MD

3/28/2019 4:22 PM

Narrative

STUDY: US ABDOMEN COMPLETE.

CLINICAL HISTORY: Generalized abdominal pain.

COMPARISON: None available

TECHNIQUE: Ultrasound, abdominal, complete

FINDINGS:

Liver:

length: 16.5 cm

Appearance: Hepatic steatosis. Anechoic cyst within the right parietal lobe measuring 6.8 x 4.2 x 8.6 mm.

Gallbladder: 1.9 mm sludge ball versus gallbladder polyp. No evidence for wall thickening, wall hyperemia or pericholecystic change. No sonographic Murphy's sign.

Bile ducts:

Intrahepatic ducts: Unremarkable

Common duct diameter : 0.3 cm

Right kidney:

Size: 11.8 cm

Appearance: Unremarkable

Left kidney:

Size: 11.2 cm

Appearance: Unremarkable

Spleen:

Length: 13.5 cm

Appearance: Unremarkable

Pancreas: Unremarkable

Aorta @ IVC: Unremarkable

Ascites: None

[farranccc]

Ermmm I’m not sure you’re allowed to post test results 😬

Nobody on here is a Dr so can’t translate them anyway but perhaps you might want to edit your post and remove?

All the best

[jazzjam]

Hey, sorry we are not allowed to comment on actual results as such. I will say, I wish my bloods were anywhere near as close to yours 😁

I would want to ask, what is the clinical trial for?

I have a polyp and cyst and my doc said, mine, are nothing to worry about and that many people can have them with no issues. I think they would be ordering new tests if they thought they were anything.

Just have a search on here for gall bladder issues, sludge etc.. some keywords and I think you will find some other people who have had experience with this.

From what I have been told by the doc is that fibrosis can be reversed in many cases by cutting out alcohol and eating a healthy diet, the Mediterranean diet seems to be the most recommended one by people’s doctors. Help the liver, which helps (well everything) including the gallbladder/sludge/bile.

I’m sorry it’s not much information and I really do understand you are scared about it all but I hope it helps 🌻

[Danubian in reply to jazzjam]

"the Mediterranean diet seems to be the most recommended one by people’s doctors". I think that could be misleading - people may think a glass of wine with each meal!

[jazzjam in reply to Danubian]

😂

[Owlie]

Hi,

I bet you’ve googled those results and scared yourself silly?! We all do it, I did it and it spurred me into action. First of all take a deep breath and breathe! As mentioned above we are not allowed to post test results as we are not Doctors, naughty Mathew! However we can talk about our own experiences. So, well done on giving up the alcohol, not easy but then nothing worth doing is. To help yourself you need to embrace a healthy lifestyle for life. If you are overweight you need to exercise and get down to a healthy weight, you also need to eat properly. Last Summer my blood tests went through the roof and I had some really scary scores which suggested my liver was in a very bad way. Ultrasound wasn’t great either but I ignored it. Called in to see the Doctor in September and given the bad news.It was a hell of a shock and even worse was I couldn’t be seen by a Consultant for months. The first thing I did was Google and scared myself stupid, convinced myself I was at deaths door. The second thing was I found this forum and in the early hours of the morning had a complete meltdown and posted my first post as I was convinced I was going to die. I hadn’t told my family about the results, bad idea as you need support, and to my amazement someone replied at stupid o clock in the morning. They listened and were very kind and calmed me down. As a result I read the British Liver Trust website and I mean everything, and decided to make changes. I am overweight and I ate rubbish and didn’t exercise. I don’t drink alcohol as I don’t like it. I researched what I needed to do to embrace a healthy lifestyle...the British Liver Trust website has recommendations for diet, have a look. I cut out everything processed, no red meat, swapped anything white for brown e.g. rice and pasta, switched to fish, turkey and chicken, no added anything, added vegetables and fruit to my diet and drank loads of water. I also changed my portion size as I was eating for a football team! I started exercising, 5 minutes was all I could manage initially and then built up to 30 mins cardio and 30 mins strength training. When I had my repeat blood tests the scores had lowered. I lost 3 stone by Christmas and I felt and looked so much better. You need to aim to lose around 1/2 lbs a week for a healthy loss, crash dieting can make your liver worse, besides this is you choosing a healthier life. Since then I had more blood tests which kept coming down and by the time I saw the consultant at the end of January and had a fibroscan, my scores had reduced to normal range. Fibroscan he wants lowering a bit more. He was amazed at what I had done and got his trainees in to question me about what I did and said I had become my own doctor and done all of the right things. As a result I have been very lucky and he said my liver is regenerating and healing itself. I’ve stuck with the diet, had a different setback with another illness which has prevented me exercising for a while but now I’m back on track, albeit with modified exercise. Still have a bit more weight to lose but getting there. Latest results even better than before.

You will see others have had great results on here from changing their lifestyle, but more than anything, you will get fantastic support from everyone. Attitude is everything, thanks Alf!, you don’t give in you pick yourself up and you try and you keep trying. It’s hard but it will work and everyone on here will support you. My final words of advice are don’t Google! Seek advice from your Doctor and support on here, feel free to message me if you want and let us know how you get on.

Owlie

[Hidden]

Thank you for your post, however as mentioned below this forum is here for members to share experiences and provide support to each other but is not a medical forum. The British Liver Trust asks that users do not ask for specific medical advice. Any diagnosis must be made by your own doctors who will know your medical history and individual circumstances.

Please see link below to the British Liver Trust website for further information regarding liver disease: britishlivertrust.org.uk/

You may also wish to contact the British Liver Trust helpline either by email: [e-mail] or by telephone: [phone] (10am-3pm)

Please don't be discouraged from seeking support and advice from members of the forum where there is a huge amount of experience and knowledge around living well with liver disease.

Many thanks for your ongoing support and understanding.

[Danubian]

you say all CT scans were fine - did they not pick up the fibrosis in the scan or are you talking about the kidney?

[IVIatthew in reply to Danubian]

They didn't pick up Fibrosis on the CT scan with contrast, it just said no significant abnormality in the Liver, Kidney, Spleen and so on.. The CT scan was a week or so before I had the Fibroscan.. They were checking my entire abdomen and organs thinking I had appendicitis or kidney stone.