Hi all, on the 18th June, I went to me GP for a routine checkup, and he was not happy with my breathing. He referred my, as a precaution direct to the local combined assessment centre for tests etc, and he wanted to rule out a blood clot on my Lung.
I blamed it on my anti rejection meds Advagraf and MMF, but he wanted it check out.
Following blood tests I was quickly diagnosed with Neuropenic Sepsis, where the White Blood Cells are extremely low, and my immune system at serious risk.
I was immediately placed on IV Antibiotics (after consulting with my Liver Unit), and while this initially helped start to bring my levels up, it didn't solve the problem. They reduced my MMF from 2g/day to 1g/day, but no real luck. Last week they took me off MMF Completely, and slowly they climbed up.
I am now how and no longer have, but I am still Neuropenic Sepsis Neuropenic, but have now been allowed home (16 days, with most in Medical High Dependancy or under Preventative Infection Control Procedures),
I thought I would flag this up in case others have heard of it, or at least to highlight how seriously ill we can get without us even knowing about it.
Take care everyone