Hey all... curious to know if there is anyone here that is going through what I am going through.
Last year I started to notice some very funky things going on with my skin and a visit to the dermatologist suggested I might have liver disease. I have seen a liver specialist and have had a decent work up on my liver and the only thing that was found was an enlarged and fatty liver. The testing I had done... TONS of labs, liver function, hepatitis panel, tumor marker, autoimmune conditions that affect the liver, fibrosure blood test that gave me an F0. I had a ct scan of the abdomen without contrast, MRI of the abdomen with and without contrast, 2 abdominal ultrasounds and 2 fibroscans done 4 months apart. First one gave me KPA 4.6 and the second KPA 6.3 and an upper endoscopy.
None of my liver labs have ever been out of normal range since this started and everything else was normal as I said except for my liver being enlarged measuring 20cm and being fatty.
Still, I have 7 confirmed spider angiomas, confirmed palmer erythema in both palms, TONS of broken veins in my face, my skin has become increasingly thin. This time last year the only visible veins I had were in my wrist area and now you can trace almost every vein in my body it looks like and all over, legs, arms, hands, chest, neck, shoulders EVERYWHERE. I knew my dr would likely think I was crazy saying that and so I started to take weekly photos of my body so I wouldn't get the "they were probably always there and you never noticed before" even though I'm not the only one who has noticed.. it's just getting scary at this point.i can deal with the other skin issues but these veins are making me very subconscious and it's just scaring the crap out of me how fast they are showing up. I am having dizzy spells daily and several times a day.
After all my testing came back good I really tried to just do what I had to do to get rid of the fatty liver and investigate other things that could be causing my symptoms but everything leads right back to my liver even the drs. Every dr I have seen since has suggested liver disease even though i tell them my liver has already been checked. Ik sure my insurance is tired of paying for liver function tests by now.
So, I saw a nuerologist today about my dizzy spells and he had my hold my arms out palms up and he noticed my red palms and asked me if I drank which I dont and havent in over 8 years now and I told him about everything else but that it was found my liver was okay and he snickered and said "you have spider angiomas, palmer erythema, an enlarged liver... you need to find a new dr" and so his words are bothering me tonight. Everytime I try to put the liver issue to bed something like this happens. I already have a hard time believing my liver is okay when I have so many symptoms of liver disease.
Is there anyone here who has gone through this before? Found any answers? I am 36 years old and have 3 kids. Every night I wonder if any dr will figure out what's wrong with me before its too late. This is all just really scary and it's starting to really take a toll in every aspect.