Hello, I'm a newbie and looking for advice/help/support.
I've had a heart problem for past 18 months, and as part of that treatment was prescribed Amiodarone to try to control atrial fibrillation. I started to get stomach issues, bloating, upper right pain, nausea, vomiting etc 6 months ago. Because it was intermittent and I had a lot going on with the heart problems I hadn't mentioned it to Docs. When I did, GP felt it could be Gallstones/bladder so sent me for an ultrasound which showed a large, bright red liver, and no gallstones.
When I saw Cardiologist a week later he did not think it was the Amiodarone causing the liver problems but another drug (a NOAC) so I continued the Amiodarone. I've since had first appt with Heptology, and my copy of hospital letters following the tests he organised say blood tests and Fibroscan results show I have Advanced Fibrosis and Cirrhosis.
After consulting with Cardiologist it has been decided I need a liver biopsy. My cardiologist advised me to continue Amiodarone, but I have decided to stop them immediately.
Cirrhosis seems such a devastating diagnosis. From what I've read the liver can repair it's self from fibrosis, but once it's moved onto Cirrhosis that's it. No going back. I am convinced it's the chemical damage from the medication. The heptologist I saw did describe it as a toxic medication. We had been expecting a diagnosis of NAFLD.
I've never been a drinker, (never enjoyed alcohol) I've never had hepatitis. I am however obese, but have lost 4 stone since April, (a mix of dieting and feeling unwell and nausea I think). In my mind I am 100% sure it's the medication that has damaged my liver.
I haven't even got a follow on clinic appointments arranged, all I've had is copy of letter sent to doctors, and conversations with my community cardiac nurse and advise via her from cardiologist. I know it's early days for me on this journey.
I feel really frightened and isolated. My heart condition and medications complicate everything, and make even having the biopsy more complex.
Thank you if still reading. Apologies, I've waffled on.
If anyone has any experience of Amiodarone and liver function, or any advise or suggestions I would be grateful.