Just a quick ?: My local gastro... - British Liver Trust

British Liver Trust

36,434 members17,953 posts

Just a quick ?

Identity75 profile image
5 Replies

My local gastro specialist has referred me to Kings, he has stated I'm looking at a liver transplant unless their pathologist disagrees for any reason.

Has anyone else been referred to Kings and if so how long did you wait till your first appointment there? It's been a couple of weeks and I've not heard anything. I'm a pretty patient patient but I'm getting to the stage where I just want a definitive this is what we are doing.

Written by
Identity75 profile image
Identity75
To view profiles and participate in discussions please or .
Read more about...
5 Replies
carmik profile image
carmik

You need to chase Kings.

Ring Liver department and ask to speak to whoever is dealing with referrals and ask them what the waiting time is.

This is just to make sure the referral has gone through.

Believe me the NHSi is a "chasing game". We learnt the hard way but know our way around the system now.

Good Luck

RodeoJoe profile image
RodeoJoe

Good advice from carmik. Although the NHS are brilliant don't be afraid to chase things up and question anything you think doesn't sound right.

Mistakes are often made and this is how patients fall through the cracks.

Jellybabe70 profile image
Jellybabe70

Chase them. my husband had his nephrectomy there. we were told 2 weeks but it ended up being 4. prof Heaton George best's surgeon was brilliant.

Helenleeson profile image
Helenleeson

Hello, I agree with all the above comments. Get as involved as you can. Chase them. Don't be left in the dark....this is your life. Good luck.

With love Helen

Identity75 profile image
Identity75

Thank you for your replies and kind comments. I have spoken to Kings and got my appointment now, albeit not till December but that's partly my fault as I'm away on the first date they offered me.

Hopefully when I get there I'll finally get a definitive answer as to what's going to happen.

You may also like...

Quick question post transplant

one minute I'm really hot next I'm cold. I wondered if this was a side effect of the drugs I'm on...

How quickly can cirrhosis worsen.

my husbands dementia is worsening and I'm his carer. I've been getting very tired and a bit down,...

Quick deterioration

hubby eventually agreed to go back to hospital. I'm shocked at how frail he now is, shuffling...

A quick update.

then scan to assess tumour response. My Oncologist has already agreed my next chemotherapy regime...

Quick update

pass judgement on me, I'm just being honest. And my sugar levels were 5.9 so I'm doing something...