So, I'm back. I came in Friday evening. Even though there's not much they can do over the weekend, I ended up getting a fever last night, and was put on intravenous antibiotics. Also, something in my white cell count they are watching got very low, hitting naught point one, so now I'm in reverse contamination.
This coming week I'll be having a drain, a liver biopsy, also checking outgoing liver pressures, a CT scan,a visit with the kidney specialist and the hematologist.
And who knows what else..lolol.
I'm ok, but very very tired. I'm sleeping a lot.
Hopefully they will figure out why I'm still having caps cites this far past transplant, and sort out my kidney and whatever the heck is wrong with my bloods.
Just wanted to update you.
I'll try my best to check back soon!
Thanks all of you for all the wonderful support I get here..really. No one understands like YOU understand!
Hoping everyone has a healthy and happy week!
xxx
Kimberly
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dckimberly
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Hi grumps! I'm at addenbrookes! I just love this place..the care is amazing! They did my transplant also. They have taken care of me for a couple of years, so I know most of the consultants nurses etc.
Addenbrooke's is only about 40 minutes from where I live, they certainly are an excellent hospital Let's hope they can get you back up and running! Thinking of you xx
I send You a BIG huge from México, hoping everything will be alright! My best wishes
I am praying with all my heart that they find out what is going on... Hopefully they will have all the results from the many tests you have had and get a picture of what is actually wrong... It's difficult with the Bank Holiday - as in our hospital - it is mainly registrars that do the keeping tabs bit... I am hoping your consultant looks at all of this closely and if they haven't got a clue - then finds a consultant who can put all this together...
We're all rooting for you hope you pick up soon, you must be so tired of all the poking and prodding and yet you still sound so chirpy, well done and stay positive. Hugs
It strange i too feel fairly calm.my check up last week i had at qe was informative.my bloods are heading gradually more wrong .cant keep warm.nausea n sicknrss...sometimes.etc.more sleepy altjough still awake half the night and major forgetfulness.
He said im showing all the symptoms tthat my liver is not managing very well.he thinks i will b asessed some time in the year andmaybe sooner if tjings change quicler.
I dont feel frightened and its wierd
Im sure i will nearer the time !!!!
I will ctoss fingers yhat you get some sense oit of them this week
I'm so sorry to hear you are back in hospital. Sounds like you have a lot to face over the next few days. Try to stay strong xxxx Wishing you all the best and that you feel a lot better soon.
Awww hope you get all this sorted soon ..You have been through the Mill..sending positive thoughts your way..hoping you will get better and back home Xx
And I'm not sure how valuable the other thing was, but sometimes I get frustrated and I'm not sure how to sugar coat the truth..not that it matters. Often they think they already have the truth, they just want us to confirm it, and when we don't, we'll...lol if we're speaking of the same post!
And I'm always grateful for your replies to posts! You have so much good info, and your very supportive! Also. Your not afraid to sling a little truth either, giggles!
I hope they've changed the film selection since your last stay. The films are what get me through hospital stays, although when I had my transplant and having watched all the films I got quite into bargin hunt. That program still flashes me back to hospital.
Hi, I have been absent here a few days but wondering how everyone is. My you have your hands full but your spirit sounds strong. I will be thinking of you. I saw my doc Friday, my tumor grew none the first year but suddenly its huge. The liver cancer some days for days in a row causes powerful pain and fatigue but the last few days have been pretty nice for me. Lots of fluid diminished. Keep us posted. Rest well.
I have a pic line infection, Again, so they removed it, a splitting headache, sighs, and now most things like the liver biopsy is on hold for 48 hours waiting to see if they got the infection. My white cells are still bottomed out, so I'm just not sure at this point.
At the Royal Free , post op I was kept going by the free Wi Fi. No need for the expensive television. At least in immediate recovery I knew what was going on, I'm now down to clinic every two weeks as all is looking good with the new liver. It must be hard work not knowing how things are going to pan out. Hope they get you sorted and home soon. Jim
Yes, I would have done the same. If it happened today I'd have my iPad and Netflix with all the films, iPlayer, etc etc etc...
At the time I had my iPad but the idea of sorting out WiFi a Netflix account etc etc was too much. It's quite a scary thought, I'm an engineer in IT, and the doing that at the time was too much, that's how much the liver affects the brain.
I have two iPads the phone and free TV..it's the only room on the ward with it and they moved me to it two days ago! Lol
Alllllllso, this kid happens to know the password to the hospital wifi..even most the staff does not. I'm a lucky kid, so I use that one and save my data from my plan! Woo hoo!
Great stuff! Your plan would have been used up in half a day so that's great. You can catch up on some box sets now. Channel Four channel4.com/on-demand has some great box sets for free. I highly recommend Man Down, Peep Show, The IT Crowd, and The Inbetweeners.
All comedy, and not everyones cup of tea! But if you like them they'll definitely keep you smiling.
Kimberley, you are in my thoughts daily. No words can express what my soul sends out to you and I write that from the bottom of my heart. Hurry up and Get Well Soon!
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Let's hope they can get you back up and running! Thinking of you xx
Has anyone here had a Kidney infection? Plus is Ciprofloxacin safe for the liver? 
Hubby back in hospital
Rib pain on the right/back side - After a hospital stay, nobody has a diagnosis!
Back in hospital 😢
