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British Liver Trust
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bilirubin level of 34

hi

i have a bilirubin level of 34, i have just had another blood test and await the results,

is 34 med or high.

thanks.

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Wow most of us on liver group only dreamed of having bilirubin levels like that. You don't have nothing to worry about

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Thanks jojokarak

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I think that technically anything under 20 is normal and therefore anything over 20 is abnormal. You will find that some here have 10 times your level. My own bilirubin level 10 years after a TX for PSC varies between the mid 30's to low 50's. Your doctor will advise and may want to establish if there is a trend. Bilirubin is an important indicator of liver health but there are more important blood factors.

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Thanks Peter

My bloods are all normal just the Bilirubin level, I am waiting for Retest results then i will speak to my doctor.

thanks again.

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I’m only 16 and my bilirubin levels reached over 40, my doctor mentioned Gilbert’s syndrome when I was 13/14, I’m really worried, I eat normally (big appetite, I actually eat more than my 21 year old brother and I physically can’t gain any weight 54kg), not much fatty foods, cut down many sweets and almost no snacks, no fizzy or sugary drinks, take tablets like omega 3, vitamin c, vitamin D, chlorella, spirulina, etc everyday, I have normal urine and feces colours but my eyes aren’t as white as they used to be and my friends mention how yellow I am, is there any medication to lower bilirubin levels? I really hope that I will be able to eat normally and will revert to my normal skin tone otherwise I can’t live like this.

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I know you say doctor 'mentioned' Gilbert's Syndrome in the past but did they actually confirm a diagnosis. There is information about GS on the British Liver Trust page at:- britishlivertrust.org.uk/li... I don't know whether it'll help at all. Have they looked at any other potential issues with your liver?

A return to doctors seems necessary to get some additional checks done.

I can also tell that having this potential issue is causing you some anxiety. If it would help to share your worries with other young people who are also experiencing liver issues then at 16 years old (indeed up to the age of 24) you can access support through the Children's Liver Disease Foundation - they have online support and more. You can reach them at:- childliverdisease.org/

Hope you get some help.

Katie

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Mine is usually around 34, and in the absence of any other disfunction in my liver, I have been diagnosed with Gilbert's Syndrome - which although thought to be benign by most doctors ......it does have an effect. As I understand it I am missing a certain enzyme and as a result I'm at higher risk of toxicity from drugs like paracetamol and if I drink just a bit of alcohol it makes me quite ill. I don't know if it's why I have multiple chemical sensitivities?

When I had a gastroscopy the nurse said she'd have to give me less of the sedative as I would likely react more to it having Gilbert's and I find that I get a greater reaction to codeine than other people I know.

My eyes are usually slightly yellow around the edges but apart from that it's not very troublesome if I take care with what toxins I'm ingesting!

Might be worth asking your doc if it's Gilbert's - there is a starvation test you can do to 'prove' diagnosis but my docs don't think it necessary as I always have raised bilirubin every time I get a blood test.

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Hi Zara-LouiseD

Thanks for all your information and i will ask my doctor about Gilberts-syndrome

I am waiting for retest results to come in and then i will talk to my Doctor, With your information i have a better understanding.

Best wishes

Pauela

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Although not ultra high, it is high in the medical sense and definitely not normal and needs investigating.

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Thanks for your reply, i will make a further appointment with my doctor.

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34 is only just above normal, mine peaked at 570 a few weeks ago and I was totally yellow

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Thanks for your reply i have a lot to go to catch you up.

thanks again.

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Mine has peaked at 320 but today is 288 look like homer simpson and itch like hell wish I was 34

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My nephew has 377 and is in icu after 2 liver transplants in 3 days and very poorly , can this be sorted

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Hi Pauela,

It would be advisable to speak to your doctor about interpreting your blood test results.

Differences in normal range for different laboratories can make it difficult to compare or comment on individual test results specifically. This is due to the different brand of tests that are used and how these are interpreted.

Your own doctor will be able to correctly interpret your results and plan accordingly,

Best wishes,

Rebecca

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Thanks Rebecca i will.

Pauela

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Hi I’ve just had my results showing my bilirubin level at 20. Is this acceptable or high? The nurse didn’t really explain much about it or why it was this figured.

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Hi cuteporter10,

I believe 20 would be fairly normal. You definitely don't have anything to worry about.

I was diagnosed with Gilbert's syndrome at age 16 (even though I would probably have had it since birth and had jaundice since primary school) which means I have a high level of bilirubin. I am 18 now and my count is usually at 42, but when I get sick it increases. Yesterday, I was very unwell and it rose to 83. I will be seeing a GP in a week to check if it goes down again once I'm better.

Gilbert's syndrome usually doesn't cause any complications whatsoever. Some people don't experience any symptoms and I'm sure many people live their whole life without even knowing they have it because it is usually discovered by accident. Usually the only symptom is jaundice and that is what I have.

My eyes are always yellow (people ask if I have hepatitis, I don't), but when I am not looking after myself properly, they go even more yellow so all I have to do is look in the mirror to see if I need to change something I'm doing. For example, make my diet healthier, do more exercise, limit my alcohol consumption, drink more fluids, sleep more, etc. I take vitamins everyday because without them my eyes are an obvious yellow. (My mum likes that she can check how well I'm looking after myself by how yellow my eyes are.)

Hope this helped!

silkylawyer

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Thank you for taking the time to reply and reassure me. I was concerned as my doctor told me it was a bit high compared to my previous results and because it had never been brought up before. I have had a recent viral infection ( hence the reason for my blood tests) do I suppose that could have elevated my count as it did yours. I'm eating lots of fruit and fibre now so hopefully my next blood tests in two months will show an improvement. Thanks again for explaining it to me and hope everything goes well for you.

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