New to the site & only found it because I was looking for some travel advice (found that ). I had my transplant on 18 Aug 2014 and am now feeling a whole lot better than I did before the op. The first year was 'different' - taking all those medications, keeping a close eye on diet and coping with a huge scar which has now sorted itself out. Today, I'm 4 stone lighter than I was at the time of the op mainly due to exercising daily and eating healthy. When I left King's for the 1st year I was back on a regular basis which was very time consuming because I live in Christchurch (7 hour round trip). That was altered so that I could be monitored by Bournemouth Hospital (1 hour including waiting time!). Liver-wise I haven't had many problems since the transplant and I changed meds last year from Prograf to Advagraf. Started off at 4 mg of Prograf twice a day and now on Img Advagraf once a day (since Nov). The biggest problem I had was with Prograf side effect (ankle swelling). No adverse reaction to the Advagraf
I thought I'd join this site just to offer my info and any advice if anyone needs it. My problem was with jaundice, cirrhosis and a couple of small black spots on the liver; then a 3-week stay in Todd Ward fixed that! The cause of the disease wasn't alcohol although that is the first thing that comes to mind when people find out you've had the transplant. I got told by experts that I didn't drink enough to cause it! That keeps me happy. However, it has made me think a lot more about drinking. I've not had a pint since 6 months before the transplant. I can still go to the pub but not for too long - there's only so much Coke you can take.