Hello. Complete newbie here.
I'm 35 and I was diagnosed with cirrhosis of the liver today.
I was referred six months ago to a Hepatologist who thinks that this is due to Haemochromatosis but my biopsy came back suggesting that there was no evidence of iron in the tissue sample. My specialist says this is odd because my initial bloods showed high iron levels (500 or so). Bloods have been done again today to see what the story is there, the biopsy results are also being sent off for a second opinion.
So, I now will be seeing them every 6 months to monitor what's happening to me, which I'm grateful for, but I'm told that my liver is functioning 'normally', and if the gene work comes back saying I've actually got Haemochromatosis, phlebotomy will alleviate the symptoms.
I'm completely confused here... Can I ask to see my results to show another doctor that can tell me what's happening?
So basically, I've been told that I've got mild Cirrhosis of the liver, and that's all the info I've got until I see them again in six months.
Frankly, I'm terrified and I don't know what to do. Everything I read tells me that there's no such thing as 'mild scarring' and that I've pretty much got an irreversible death sentence.
Any advice appreciated. Thank you for taking the time to read this.