Update- Cirrhosis at 35: Hi everyone... - British Liver Trust

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Update- Cirrhosis at 35

123AF profile image
6 Replies

Hi everyone,

Two weeks ago my husband was in the ER for Cirrhosis symptoms. We were told he had three months to live and had to wait until he was sober six months. We clearly did not have that time. We were able to find a transplant center that would take him and with 24 hours notice boarded a medical jet (he was too ill to be discharged) and flew out of state. I am staying in a hotel with hopes to get a short term apartment.

Today we got the call with a liver offer!

If everything goes well he is having surgery in the morning ❤️

Please send him your thoughts and prayers that everything goes well.

If anyone has experience or post transplant advice I would love to hear it.

With love,

123AF

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123AF
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6 Replies
FlyingArrow profile image
FlyingArrow

Dear 123AF

I shall pray that your husbands operation is a success and that he's strong enough for a full recovery and a future life style with no alcohol ahead.

Take care of yourself in the meantime as it maybe a long road ahead!,

Love FlyingArrow xx

Laura009 profile image
Laura009

Lots of people on this forum with liver transplant experience who l am sure will share their incredible stories.

All the very best to you both

Laura x

Lam1e profile image
Lam1e

That is such good news and I hope everything goes well🙏 Whatever hospital he is in the team are fabulous! I met the anaesthetist beforehand for a good old chat and the co-ordinator was giving me regular updates and then I walked with them to theatre! The team all said hello and next thing I know I wake up in the strangest place ever ITU. I think between the drugs and the machines it might be a bit daunting, but the staff there are also amazing and every shift I had my own nurse, not sure how it all works with Covid, or which hospital you are in, but the care is amazing! Be prepared to have weird conversations and hallucinations are pretty common. The first couple of days evertything comes to you, ultrasound, X ray etc!

I had my gift on the 10th December and got back to my home hospital on the 26th December and got home on the 20th January🙏

Other people will have different timeframes, I had complications but completely unrelated to my liver who is called Billie🤗

Will be thinking about you today and if you have any questions or worries please feel free to drop me a message!

Sending all best wishes and a large virtual hug🤗🤗🙏

Lesley

Lots of our members will be able to share their experiences of transplant with you.

Keep us posted.

Catlady1972 profile image
Catlady1972

My prayers and positive vibes go to you and your hubby that all goes well and guide the team of health professionals xxxx 🙏🏼

Lightning999 profile image
Lightning999

Grate news pleas everything goes well .i myself is waiting for a new liver and removel of enlarged spleen for nearly 5 years I run a Facebook page called life after death I'm trying to raise awareness for the carrying of organ donation so I would love you and as many of your friends to do as well.a speedy recovery. Ps was this all covered by medical insurance search Damien collier and you'll find me .

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