Great news, Our son had his final 2 day assessment at QEB Wed & Thurs and was told before leaving after lunch Thurs. that he is being listed for a transplant on the Priority List.
We now wait for the letter / phone call with all the confirmation on it...Believe it can take up to 2 weeks before he is actually '' On The Lis t'' is that so does anyone know ??
He has a UKELD of 56....now the waiting begins...he will have to have dialysis during the operation & also after..not sure for how long or where will keep all updated..
Our elation that he is on the list is tempered by the fact that sadly someone must loose a loved one for him to survive.
Regards & Best wishes to all