Transplant list

[Dannythedog]

Hello again

Hope everyone doing well 😊 I posted on here a few weeks back as my husband was going through tests as part of the work up for liver transplant. We had our Assessment in Kings last week and flew back to Belfast on Wednesday, we got the call on Friday to say he has been put on the list!!! 😊 we are so happy and relieved and hope we don’t have to wait too long. I feel bad saying that we are happy as I know some poor family will be grieving 😔

[alfredthegreat]

Hi Danny. Congratulations on getting placed on the list. It's an anxious time when you are going through all the tests and then waiting to hear. Then it's the next stage of bag packed and listening for the phone ( the bag that in all probability you won't need anything out of for at least 3 days ) Hope that your call comes very soon. Very best wishes. Alf.

[Dannythedog in reply to alfredthegreat]

Thank you 😊

[Hidden]

Good morning Dannythedog,

that is good news ! I am sure there are many on the forum who know exactly how it feels in this situation and I am sure they will all support you through.

I have attached the link to the British Liver trust information on liver transplant.

britishlivertrust.org.uk/li...

Keep in touch and let us all know how things go.

Best wishes

Trust9

[Dannythedog in reply to Hidden]

Thanks 👍

[Hidden]

Awesome news, I am so very happy for you. Hope your wait is not long. It can be a bumpy road but one so worthwhile the travel.

Stay fit And as eat as healthy as you can. I send many congratulations xxx

Jaycee

[Dannythedog in reply to Hidden]

Thank you 😊

[Hidden]

Hi

I'm so pleased for you. I hope your call comes very soon. Take care Lynne

[Dannythedog in reply to Hidden]

Thank you 😊

[Hidden]

Whoopi! Whoopi ! Whoopiiiii Danny! Excellent News! Like others have said hope it's not long before you get the CALL !

Good luck my friend!

Trish x

[P13jne]

Thats fantastic news, hopefully won’t be too long for the magic call. Please keep us all updated on your journey, wish your husband best wishes whilst he waits patiently. Jane xx

[ThreeSmiles]

Great news Danny 👍👍👍. You have every right to be happy but of course you think about the donor. Everyone does. I still do a year on. You may feel a bit better when you manage to get to the point when you write a thank you letter to the family. To me that was a very difficult task but I did feel better after I had hand delivered it to the Transplant coordinator.

I do hope you get the call soon - probably at 2:30 in the morning 😁., but any time will do! Good luck to you both.

Miles

[Dannythedog in reply to ThreeSmiles]

Thank you 😊

[Popel]

Congratulations had mine six months ago and being on here has been invaluable.but it’s been hard work recovering but the difference it makes to your life is staggering. And I’ll never take life for granted again.wish you both well.paul

[Dannythedog in reply to Popel]

Thank you Paul 😊

[Smyally]

So pleased your on the list. Hope you don’t have to wait too long xx

[Dannythedog in reply to Smyally]

Thank you 😊

[Twinkle30]

Hi,

My husband is due to have his assessment tests in the coming weeks at Kings, we are just awaiting for his inpatient date. They are looking to put him on the liver and kidney transplant list. It has all come a little earlier than anticipated, we thought we may have another year of the bucket list travels. He is positive that they can be resumed after transplant which is the mentality I am going to encourage.

You mention you are in Ireland, did they say how quickly you will need to get to Kings if you get 'the call'?

[Dannythedog in reply to Twinkle30]

Hello

Yes we live in N Ireland and we were told to make sure we have our phones on at all times and have our bags packed as we will need to leave as soon as we get the call. Patient travel made the arrangements for us to go over last week so I’m assuming they will do the same when we do get the call. Yes it’s good to be positive and you will be able to continue with your travels, we hope to be able to do the same. Take care in the meantime 😊

Geraldine

[Twinkle30 in reply to Dannythedog]

Hi Geraldine,

Thank you for your reply.

Good to know we maybe able to move around the UK whilst we wait for that magical call.

Strangely my husband got his inpatient dates yesterday for his assessment and it is all starting to feel very real.

Possibly our paths may cross at some point at Kings!

Take care

Laura

[Dannythedog in reply to Twinkle30]

Hello Laura

If you are planning on going away for a few days whilst on the list, you need to let the Transplant Co ordinator know. All will be explained at the education session when he gets accepted. 😊 All the very best for your husband and I hope the assessment goes well. 🙏

Kind regards

Geraldine

[ThreeSmiles in reply to Twinkle30]

Hi Twinkle

I had my TP at QEHB so know nothing about Kings but our rules were:-

Had to be able to leave the house in one hour.

Were not allowed to use public transport to get to QEHB. If we got stuck in traffic they would send a police escort.

You couldn’t travel abroad for 6 months after the TP.

Personally we never went further from the Hospital than the distance from our house once on the list. Then you are also “supposed” to take your overnight bag with you wherever you go.

Hope it all goes well!

Good luck

Miles

[davianne]

Great news Danny, i hope the call comes soon👍👍👍

David

[Dannythedog in reply to davianne]

Thank you David 😊

[mattymoo33]

Hi Danny. I'm new on here.

I am so pleased your hubby is on "the list". What a wonderful gift the donors provide. Fingers crossed for you 🤞xxx

[Dannythedog in reply to mattymoo33]

Thank you and yes I agree it’s wonderful 😊

[Maxey666]

Hi Danny

Hope you get called as quickly as I did the first time. Perhaps our paths will cross in Todd ward. Take care.

[Dannythedog in reply to Maxey666]

Thank you and you never know they might 😊

[GrannyDoll61]

My hubby was listed on a Tuesday and had his transplant on the Friday Danny. Think he was very lucky though. Mind and pack a wee bag for yourself too .🤞

[Dannythedog in reply to GrannyDoll61]

Thank you, all packed and ready to go 🙏