On the list!!!: I finally heard that I... - British Liver Trust

British Liver Trust

38,081 members18,674 posts

On the list!!!

15 Replies

I finally heard that I made the transplant list

Got to get my Hepatitis jabs then the wait and visit to keep on eye on me start

The waiting for the call is a stress in itself and a nice and local holiday will be necessary

I hope anyone else at this stage is coping ok

David

Read more about...
15 Replies
Dulux profile image
Dulux

Welcome to the club!

Currently bags are packed, we have sorted out some last minutes plans as I have a little girl who will need to be looked after etc.

Trying to keep as fit as possible and stay healthy, no holiday for me I'm still at work.....

One of the weirdest things I am having is dreams every night about hospital, they are not scary or nightmares, just dreams, its very frustrating as I cannot really remember much detail, and I much prefer to dream about Jennifer Aniston riding on a jet ski with me, that is a much better dream!!

grace111 profile image
grace111 in reply toDulux

😂

grace111 profile image
grace111

all the very best to you david. i hope things progress very quickly for you and that your outcome is health and wellness. god bless you love grace xoxoxo

jojokarak profile image
jojokarak

I am also on the list so welcome to the club lol. I really do put it to the back of my mind otherwise it will just take over. I think what will be will be we know we are going to get the call so got to carry on as best as we can x

in reply tojojokarak

Good luck to you as well

pear-shaped profile image
pear-shaped

Congratulations David!

Keep your strength up and positive outlook!

Sending plenty of love,

Pear

in reply topear-shaped

Thank you for the thought

Congratulations David. I hope you have a comfortable wait. Local holidays and trips out were a really enjoyable part of my 6 month on the list. We (re)discovered places that had dropped off our radar and it was good to plan and go. It did get a bit frustrating towards the end when the longing for some sunshine became a bit of a preoccupation.

Let us know how it all goes.

in reply to

Done once waited for a year that time, I am planning the trips that can be done after the op

Many thanks

h0b0 profile image
h0b0

I know it's not easy but you have to try & carry on as normal. Everytime the phone rings you wonder is this it & then some foreign person talks about PPI !!!!

My partner only waited 6 weeks but that was because he was more ill than we had realised.

Very best of luck.xx

RedKel profile image
RedKel in reply toh0b0

OMG I just read your comment and laughed, the PPI calls!! I feel exactly the same & these days it isn't even a human but a bloody recorded msg!!

Thanks

AyrshireK profile image
AyrshireK

Best wishes David, I know this is second time round for you (as regards being on the list) so fingers crossed you get the call sooner rather than later and that all goes to plan with a successful transplant.

Katie x

Thank you comments much appreciated

RedKel profile image
RedKel

Hi David, I'm going through the same, I made the list about 2 months ago now after what seemed never ending tests, scans & talking. I felt very relieved when I was told but a new stress took over, the panic every time the phone rings, worrying I may miss the call etc I don't know if you feel the same or if its just me. Anyway love good luck and keep us all updated xx

Not what you're looking for?

You may also like...

On the List

After a month of test and waiting I heard yesterday I am on the transplant list at the QE...

ON THE LIST

Great news, Our son had his final 2 day assessment at QEB Wed & Thurs and was told before leaving...
grumps profile image

On the transplant list 11m

I am on the UKELD score, but not too severe at present. I am doing everything I am supposed to....
taar profile image

Cirrhosis and NOT on the transplant list?

Has anyone else been diagnosed with cirrhosis and not been referred to a liver unit, or put on the...
Garyvh profile image

Life on transplant list

Hi everyone Just like to get peoples thoughts on how to go about life whilst on the transplant...

Moderation team

See all

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.