Last November I had a liver review with my Consultant re. my Hep C. For various personal reasons I cannot commit to treatment and am hoping for a new drug for Genotype 3 that doesn't contain interferon to come along before I pop my clogs. I took a list of all my worsening symptoms and was sent for an Ultrasound scan and blood test. On the follow up appointment (had to cancel a few due to illness, finally got there last week) he said there was no sign of cirrhosis but wasn't clear about how much scarring there was. He doesn't give me facts and figures, I suppose he may think his patients can't understand the jargon. I have asked to be sent the results as the scan was done by an unsupervised student and I've heard that the expertise of the radiographer makes a difference. He did say I have a vitamin D deficiency. My diet is high in Vit D and I take a multivitamin. When I got home I checked online an saw that Vit D deficiency is common in HCV patients, this wasn't made clear and was mentioned as though it was nothing to do with my illness at all. I am very worried about the pain in my side that is getting worse but no-one has ever even palpated my abdomen to see where its coming from. He said that the scan did not show the thing (can't remember, something to do with sac around liver?) that normally causes right sided pain and was very dismissive. I also have joint pain in my hands, my skin hurts to the touch, nausea, itching, bright red palms, bloating, pain when I urinate, bowel problems, loss of appetite, incredibly debilitating fatigue like I've been hit with a steel door, really bad rages and anger, thinning hair and dry skin, muscle aches and weakness and according to my Consultant there's nothing to worry about!!!
I was diagnosed (by chance) about 6 years ago but think I've had the virus for 30 years. I don't drink any more. Before I got the diagnosis I thought I had ME or fibromyalgia. I was relieved when it was a condition that isn't controversial but now I'm thinking could I have ME alongside the HCV? My Consultant seems very reluctant to acknowledge that all my symptoms are due to HCV or to believe how unwell I am. Advice please!