reclast no more: after reading on save... - Bone Health and O...

Bone Health and Osteoporosis UK

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reclast no more

Radars profile image
5 Replies

after reading on save our bones regarding how people are suffering on osteoporosis drugs reasonably healthy people becoming crippled ,is it really worth it,I had 1infusion on April 25th, 2 days later I was in a/e peeing blood, urinary tract infection and felt really crap,

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Radars profile image
Radars
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Fruitandnutcase profile image
Fruitandnutcase

That is a very difficult question to answer radars and I completely understand why you are asking it. Unfortunately I’m not sure there is any sort of answer, ultimately I think you have to do what feels right for you.

In my experience the people I know who take drugs for osteoporosis (infusions like you have had and tablets like I had) all swear by them and look at me as if I’m completely deranged for not taking them - I stopped my weekly alendronic acid tablet after four months because I felt so bad, so I just don’t talk about it.

It seems to me that some people take osteoporosis drugs and seem well while others like me don’t and although I was offered an infusion. I felt so ill on the tablets that I couldn’t face taking the risk that I might feel just as awful with a year’s worth of bisphosphonate in my system. I also know there are people who take the drugs and continue to fracture and people who don’t take the drugs and who seem to be ok.

I feel for you because it’s a very, very difficult decision to make and the medical profession will always push you to take them.

Mgtd profile image
Mgtd in reply to Fruitandnutcase

Like Fruitandnutcase I do not have a “this is what you should do” answer. That said when I read your post here is what I thought.

When I had my initial baseline Dexa scan it showed the being of osteoporosis. So my family doctor told me to do three things - lose weight, begin a regular exercise program of resistance and aerobics (walking) and change my diet. The combination of all three has helped me improve my bone health.

It is not a miracle or easy fix but it may help based on your response to drugs. It is better than nothing. I now do weights for 20 - 30 minutes each day and walk 6.5 miles each day Rain or shine. I bought an Apple Watch to check my daily step progress versus my daily/weekly goals.

On a more personal note my grandkids think it is cool that I have an Apple Watch.

Radars profile image
Radars in reply to Mgtd

thanks but I have severe osteoporosis, asking for trouble lifting weights,

Mgtd profile image
Mgtd in reply to Radars

To keep muscle tone all you need are 5 pound dumbbells and a straight back chair. There is a excellent UTube showing how to do that.

Screwed profile image
Screwed

did you get through it? I’m scheduled for my first reclast IV in April. I’m trying to stop Prolia due to side effects.

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