Hi everyone. My name is Suzann. I stumbled upon this wonderful site / community some weeks ago and have very much appreciated reading your discussions on various topics. Your generosity of spirit, warm support of each other and input from personal experience is so welcome for people like me who are "newishly" diagnosed with copd.
In May 2013 I was diagnosed with endometrial cancer. Before surgery I was sent for ct scan of the chest, abdomen and pelvis. I was told the results were good. meaning no cancer spread to other areas or lymph nodes etc.
I had a radical hysterectomy the following month. The morning after the surgery the surgeon told us there was very little disease actually no cancer was found on the hysterectomy pathology. It was classed as stage 1A and no further treatment required. Of course I was feeling thoroughly blessed. Before the surgery the anaesthetist asked me about any problems etc and I'd told him I had sometimes woken up in the early hours of the morning feeling tight in the chest, I was a smoker and made a habit of clearing my throat type cough. I thought I had night time asthma.
The day after the surgery he visited me and told me what I thought was asthma was showing on the scans as mild emphysema. (Funny my GP and 2 other specialists had told me the scans were good...well I guess they were in regard to what they were looking for) He suggested if I stopped smoking hopefully I would maintain my current level of fitness and it would not progress. I never touched another cigarette. Someone who had wasted God knows how much money on patches over the years when they went on get fit binges, only to rip them off and have a fag, just stopped cold turkey. It wasn't very pleasant I had surgical menopause so my life suddenly included hot flushes and nicotine cravings.
A couple of weeks after the surgery I started walking in earnest. My life was pretty active anyway. For the first few months I noticed all the wonderful benefits of quitting, The cough went within days. I no longer woke up feeling tight in the chest. The occassional wheeze was gone. Although it was tough as first I felt stronger and fitter and extended the distance I covered.
Then I got a flu type bug. Starting with really bad sinus. I never get sinus without ending up with a chest infection. I noticed not long after this that doing chores that were run of the mill for me caused me to huff and puff (breathless) That turned me off walking for awhile. I have re commenced but I couldnt hold a conversation with anyone while im walking.
This is getting a bit long winded if your still with me thank you. My question is several fold. I have read where others have become worse after giving up smoking. Why is this and does it pass? I cant get my head around the fact that if this breathlessness is progression does it happen just like that ? I was not on any medication but went to a GP a few weeks ago as a new patient. He had his nurse do a spirometry test. I didnt get a print out but the numbers were I think 80% fev1? then he divided something by something and came up with 59%. I was given a nebuliser treatment with ventolin and re tested but there was only a 1% difference. I figure that ruled out asthma. I was given See Bri Breezhaler and an anti biotic.
Earlier this week I had an erratic heartbeat that I have had before but not ALL day long. I went to the dr. A cardiograph showed odd things involving the bottom chamber and left side of the heart. I have since had a chest x ray (no phone call so it must be ok) and blood tests and have an appointment with a cardiologist next week. I feel better knowing other possibilities of causes of breathlessness are being looked into. has anyone had a similar experience? Thanks for your patience.
Warm wishes to all