Not a great update : Dan had 3 seizures... - British Heart Fou...

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Not a great update

Valentina98 profile image
36 Replies

Dan had 3 seizures during the night so they have decided to put him in an induced coma. Hopefully this is what he needs to make a full recovery.

The hospital staff brought me a tea and some biscuits (I think they've taken pity on my emotional pregnant state)

I'd planned to go home at lunchtime, (I need to take some dirty clothes home to wash (if you know about seizures then you know what I mean) I'll bring him something comfy.) however around mid morning, I just sat next to Dan's bed, and cried my eyes out, I was inconsolable. Bec had just arrived and the hospital chaplain was doing her rounds and she took me to one side Bec told her a little bit about me and Dan and I went into a little private room and I talked to her for about 2 hours, I told her everything more then I tell my therapist. I even let slip Olive's name (our planned birth name) I went back and told Dan that as we've both promised each other we're not telling anyone.

I'm not sure if I'm going back tonight, I want to but I really need to relax

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Valentina98 profile image
Valentina98
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36 Replies
Elsabounre profile image
Elsabounre

Did not expect this..it is sad..hope it will help and he will not be in a coma for too long..can he have seizures while being in a coma??.May be a silly question..but just entered my mind..I hope that he will recover fully and you need to keep your strength up too..best of luck to you both.

Valentina98 profile image
Valentina98 in reply to Elsabounre

I asked the exact same question to the doctors earlier.

It's less likely that seizures will happen, while in an induced coma.

BeKind28- profile image
BeKind28-

Hello :-)

Sorry to hear this news

I know nothing about your Boyfriends condition but I wondered if you looked on the other Communities on here if someone will be able to reassure you and be able to give you some feedback to help you with what is happening at the moment

I will put you the link to one that looks good but then if you put something like seizures in the search for Communities quite a few seem to come up :-) x

healthunlocked.com/headway/...

Valentina98 profile image
Valentina98 in reply to BeKind28-

I was going to have a search for forums this evening,

thanks BeKind

V x

BeKind28- profile image
BeKind28- in reply to Valentina98

:-) x

Yumz199725 profile image
Yumz199725

Aww v I'm so sorry to hear 💔😔 maybe that's what he does need to get better xx

MadBunny profile image
MadBunny

So sorry to hear your news Valentina. Sending you my love 🤗🩷🩷🐰

Digger0 profile image
Digger0

DM sent xx

Deejay62 profile image
Deejay62

Sorry to hear this V after it seemed he was doing so well. Hopefully being in a coma will allow his brains to heal x

PinkKizzie profile image
PinkKizzie

So sorry to read this Valentina98, sending hugs and positive thoughts 🫂xx

Cat04 profile image
Cat04

Hopefully the coma will give his brain the time it needs to recover from the operation. Have the doctors explained it all to you?Sending hugs and prayers for both of you x

Valentina98 profile image
Valentina98 in reply to Cat04

Yeah, the doctors explained what was happening. I think I took it all in

Cat04 profile image
Cat04 in reply to Valentina98

It's a lot to deal with and you are probably still in shock too. 😘 xxx

Callie456 profile image
Callie456

Oh V, what a hard day. I daresay the coma will give his brain time to recover by just sleeping. Difficult for you to watch and wait, but hopefully he'll then wake up much improved and he won't remember any of it.Thanks for the update. Rest as much as you can, praying for you both 🙏

Valentina98 profile image
Valentina98 in reply to Callie456

That's kinda what the doctors said, if he is sleeping the brain isn't doing as much so it should help him recover.

Going by what they said, he won't be in the coma too long that's if I understood them correctly. There was a lot to take in

Czech_Mate profile image
Czech_Mate

We are with you.CM

Dyllibobs profile image
Dyllibobs

Oh, I'm so sorry to read this. This is the time we put our trust in the amazing Doctors & Nurses as they know exactly the right thing to do. He's in the right place & hopefully has time to recover whilst in a coma. Sending love to you xx

A246 profile image
A246

Dear Valentina, so sorry for what you are all going through. Please may I send my best wishes and prayers for you all. May God bless you all and watch over you all at this difficult time. Thank you for updating us. X

Boohbette17 profile image
Boohbette17

Dear Valentina98, I had to do a quick search on a prev post to understand the situation. Sending much love & prayers for all of you. My bf is a retired police officer ( in the US) as a whole , they are all STRONG TOUGH men/women. 🙏💪 my brother had a brain bleed in a different way (subarachnoid hemorrhage) surgery was successful & I have faith for your husband too🙏

I believe I read something about thyroid in your bio. ( I have Hashimoto's) ) Please don't forget your medication it's really easy to forget these things when someone is ill . It's really important for your baby too that your levels are good. Lastly for a myriad of things the body needs magnesium levels to be good. Look up about magnesium bisglycinate .

verywellhealth.com/magnesiu...

It doesn't need stomach acid to absorb in the body. Magnesium helps all kinds of cramps including brain. Again MUCH LOVE & SPEEDY HEALING TO ALL 🙏🥰👍🌸👨‍👩‍👦 😃 POSITIVE VIBES!! ☀️

Silvasava profile image
Silvasava

So sorry for your poor Dan and you Valentina. If it's any help some years ago my son had total heart failure out of the blue and after they resuscitated him he was put into an induced coma for about 3 days to give his body time to recover, he was also kept at a low temperature. He recovered completely. Look after yourself and little Olivia, the hospital will be doing their best for Dan. Sending you love and positive vibes for Dan's speedy recovery

Blueflags profile image
Blueflags

Really sorry to hear that, but as many have said, it will give his body time to rest and regain strength, wishing you both lots of love 💕

Murderfan58 profile image
Murderfan58

Valentina I am so sorry about Dan but the hospital is doing everything they can for him. But you must look after yourself and your precious baby . Very glad you have plenty of support ..But you need to rest . I don't know how much longer you have to go before your beautiful baby will be born but you need to be fit and healthy ready for her to arrive.

For 32 years I had limb jerks from the age of 29 and 4 months of seizures which could last 8-10 hours and they took my speech. The first seizure was the worse as I didn't know I wasn't talking until I saw my daughter crying and she said mom you aren't saying anything. Which broke my heart luckily after each one my speech did come back after a few hours.

Dan's body will have hurt him so glad they have put him into a coma . I know how terrified you must be .

It's only in 2020 and confirmed in 2021 that I was born with a hole in the side of my heart and have PAF on Flecainide and Apixaban.

Since a child I have been in constant pain and fall a lot . My parents where told it was growing pains and I was clumsy. I finally got my diagnosis for my neurological condition 1st April 2022 I was born with hereditary Hyperekplexia gene mutation SLC6A5 type 3 it's rare which effects my mobility and cognitive function and a host of other things. But my neurologist had started me on Clonazepam March 2020 with in 2 weeks my limbs where still . I haven't had a limb jerk of seizure since. March last year my Clonazepam dose was put up to 1mg twice a day . Which has helped a lot. Still fall still have all the problems with it but not having the limb jerks and seizures changed my life. But all my joints are damaged. I am my neurologist first patient to have this and none of his colleagues have had patients with it. But there is a Facebook group who have been a great support to me. It's world wide and there are 994 of us.

I was brought up with a large extended family who never treated as different. And met my husband Nick when I was 16 he was 18 . I told him about my problems but it didn't phase him. Even when I got worse in 1988 and our children where 4 and 6 months my darling Nick just said we alter our way of life to suit you and be a normal family. I was in a wheelchair until the children where older as my walking was so bad. Nick kept his word until the day he died from cancer aged 47 20 years ago.

Why I am telling you this never give up hope and no matter how Dan is when he leaves hospital you can be a real family and face whatever life throws at you and be a normal family. Actually there is no such thing as normal but you know what I mean.

I will be 66 end of this month . And having my 2 diagnosis of what I was born with has made my life make sense . Only wish Nick was alive as without him I couldn't do what I do. He made me promise to live the best life I can and I do.

It only took me moving from the black country to the north west to get my diagnosis as the healthcare here is brilliant.

Wishing you and Dan all the best .

SuperFluff profile image
SuperFluff

Glad you have had a good cry and a talk to the chaplin - you really need to let it all out. This is such a tough situation for anyone to deal with. I am sure the doctors and nurses will be doing their absolute best for Dan. The induced coma and rest for his brain can only benefit him. Have a good rest too yourself x

LSCE profile image
LSCE

Hi Valentina, so sorry to hear of Dan's set back. Put your trust in the medics. I'm wishing Dan a full recovery. Please do look after yourself and Olive, take that break whilst Dan's in the induced Coma. Xx

Valentina98 profile image
Valentina98 in reply to LSCE

I'm still going to see him, as me talking to him will help. I might not stay all day, but I'm here now

Wooodsie profile image
Wooodsie

I'm sorry to hear this Valentina, I hope the coma helps. You are going through some very difficult times.

Deejay62 profile image
Deejay62

Hi V try and take some time for yourself. Olive needs you to rest and relax. Dan is being looked after and is in good hands. x

Gladys23 profile image
Gladys23

So sorry to hear of your sad situation. Sending prayers and thoughts to you both for a safe speedy recovery. Try to take care of yourself and your baby

Avagra profile image
Avagra

Stay strong ❤️

Newstart3 profile image
Newstart3

So sorry to hear this. Whilst it seems like a step backwards, it does also sound like this is what he needs to help him get better. I'm not surprised you felt overwhelmed and were sobbing, it's such a lot to deal with. It sounds like talking to the Chaplain helped ... someone who listened without judgement. I can imagine how conflicted you feel, wanting to be with Dan and also knowing you need to get some rest and healthy nourishment for yourself and Olive. Listen to what your body needs and try to get a good balance. I get the impression Dan will appreciate your support but will want you to look after yourself too. Thanks for the update and I'm still thinking of you all.

Kazzie68 profile image
Kazzie68

sending love and healing hugs x

MaggieSylvie profile image
MaggieSylvie

This is rotten news, Valentina. I am so sorry. Dan is in the best place, though, so you do need to take care of yourself; listen to your body and get rest and nourishment. This kind of thing can really drain you, especially if you cannot reach the hospital easily. I don't know about seizures but I do understand about taking bags of clothes to wash home with you. At least he won't need clothes just yet, so take the opportunity to rest.

My partner has just started his fifth week in hospital with diabetic complications. Traumatic enough on its own, but life has other stressors outside of a hospital ward and we are often tested to the utmost.

Look after yourself and your tiny one, and I hope the coma allows Dan's body to heal - soon.🤗🤗🤗

Airlie37 profile image
Airlie37

So sorry to hear this Valentina,I'm sure the doctors know what they are doing and they'll do what's right for Dan, now you also must do what's right for you and Olive....please have a break and get some rest.You are in my thoughts xx

Holidayescape profile image
Holidayescape

I am so sorry to read this. I hope this will help his brain to heal. Please take care of yourself too.

cappachina profile image
cappachina

So sorry to hear the news but maybe this will give his brain the best chance to recover Look after yourself and Olive Talking for 2 hours to the chaplain will have you sort it out in your mind better out than bottled up

Cat04 profile image
Cat04

Sorry to intrude Valentina98 but how is Dan progressing and you & Olive, of course? xx

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