My husband had traumatic brain injury over 2 years ago and was in hospital for 1 year. He has been him over a year and doing brilliantly, walking dogs doing alsorts and improved so much.On Wednesday I found him collapsed and he was rushed to hospital. He has started to have seizures but comes out of them himself, it's put his speech and memory back months.
Has anyone had experience of this? Any information would be appreciated
Yep I do. I have recovered from most of my TBI symptoms. However, I get 'aphasic narcolepsy', I start my days normally where everything is working but if I push beyond a certain point everything shuts down and I have to lay down because I go into an awakened dream state. It takes 3-5 days to get properly started again.
I have learned to live with it, I don't do anything for longer than 3 hours. If I go over the 3 hour mark I can see the condition coming because my eyes start to blink rapidly and then my nose starts to get runny.
This may be not what your husband is experiencing but there are continuous symptoms that appear even if you think you have got through the brain injury. I have been told these are artifacts of brain injury and that anyone who has experienced a brain injury never returns to what they were like before.
It may be an idea to keep a check on the activities your husband is doing because a change in environment or normal routine can trigger events because he may not have adapted to them.
The word 'seizure' is an umbrella term and can mean anything, you may never find out what the actual event is. He could get tested for epilepsy or narcolepsy or anything else that can be tested for and you may find an answer and maybe some kind of treatment.
At the end of the day brain injuries are complex, you can get over many of the symptoms but there is always a chance of experiencing something that no one understands. If you can find the triggers then you can adapt your life to live with them.
Get an MRI scan and some tests if you can and go from there.
Thank you for taking time to reply. He's much better today and his speech is back to normal and looks great. He hasn't has any seizures today so hopefully one meds sorted we can be back on track
Wise words as always from Pinkvision. Just adding my best wishes for your husband's timely diagnosis and effective treatment. Cat x
Thank you cat he seems to be getting the best treatment and getting back on track
That's good to hear m'love. Wishing you both countless worry free days ahead......... x
hi, totally understand and know it. After my TBI I developed seizures where I just have black out and collapse on the floor. Apparently it’s normal but so scary and frightening. It’s now when I push myself to hard to get back being the person I was once was. Typically make! Stubborn. If he wants a chat any time he can call me.
Arti thank you for replying, they seem to have them under control at the hospital and he seems back to normal on meds
Two years after I had a TBI I had a seizure. I went to the hospital and when I left, they put me on an anti-seizure med (Vimpat) and I haven't had another. My neurologist had me do a test (where they put something on my head and flashed lights) to see if they could learn more about my situation.
How scary, for you and for him!
I received my TBI nearly twenty years ago. More than ten years later, I had a few seizures.
The first one was odd - I thought I was just tired, after a long walk, and I thought I'd just dozed off, but the people there told my husband, when he got there, that it had been a seizure.
Then, a few months layer, I had two seizures, early one morning. It was in the bathroom, and I was very happy that I don't bother locking the door. I though the first one was just a faint or something, but clearly my husband heard that it was something worse, so he came in, and then he saw me have the next one. He called an ambulance, and I was taken into hospital. They did not find any reason (other than the TBI!).
I have had no more seizures, and it has been many years. I have been on a range of anti-seizure medication (and they have kept changing, as many of them have had horrid side-effects).
I am not worried that I will have another seizure, but my husband clearly worries about it. I can't drive, anyway, as the TBI has affected my vision. Having had those seizures, I suspect the doctors would say I wasn't safe to drive, even if I was not 'blind'.
Thank you for your replyHe came out of hospital today with some new anti seizure medication so hopefully it will help
Hi,
My partner had hers 3 years after initial TBI. I came home and found her outside by the bins on concrete, don't know how long she had been there, She was cold and stiff and I had to give CPR till the ambulance arrived. She has since had more. She has been given anti seizure drugs and increased the dose each time she has a seizure to try and get the right balance without it having side effects. Do they work? won't know until she has another seizure or not. But they do seem to help. Its frightening and worrying for you to see and have to deal with, but it can be controlled. Get and accept all the help you can, as you are important too.
Keep strong.
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