bisoprolol withdrawal: can anyone give... - British Heart Fou...

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bisoprolol withdrawal

Chantelle9788 profile image
78 Replies

can anyone give any advice on coming off 1.25 bisoprolol? I tried to taper off but got chest pain and faster heart rate so back at full dose as got scared

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Chantelle9788
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78 Replies
Yumz199725 profile image
Yumz199725

Hi chantelle.Was just thinking about bisoprol as I might be switched to this from verapamil by my cardiologist erm sorry can't assist aouyt coming of it but what side effects can I expect being put on it.

Chantelle9788 profile image
Chantelle9788 in reply toYumz199725

I didn’t have a lot of side effects coming on it, just really cold hands and feet, slight dizziness. What heart problems do you have? I’m still waiting to be seen by cardiology but been having fast heart rate and chest pain, feeling anxious too

Yumz199725 profile image
Yumz199725 in reply toChantelle9788

Ah ok that's kind of what verapamil does for me at the moment so won't be too much of a change, I have congenital heart disease which caused bicuspid aortic valve, severe aortic regurgitation and moderate stenosis, I had Coarctation repair when I was a day old, I have small restrictive perimembranous ventricular septal defect, ventricular Tachycardia. So quite alot 😅. Aw hope you havent been waiting too long. So the bisoprol is for your fast heart rate then? Yeah anxiety can play a big part in heart problems I suffer from that and depression, it's the constant uncertainty of it all so when you get some answers and reassurance from cardiology then that will help alot aswell. So your still waiting be diagnosed? So sorry! ❤️😔

Chantelle9788 profile image
Chantelle9788 in reply toYumz199725

I’ve been waiting 2 months to be seen, the waiting causing anxiety too i find, I never used to suffer it’s come on quite sudden and was getting strange body sensations too. Scary doctor said anxiety but I’m unsure. I’m worried staying on this beta blocker too and no energy and breathlessness

Pinky20J profile image
Pinky20J

Hi. I am coming off of bisoprolol 1.25mg as we speak. It is day 8 fir me. Yesterday I had tachycardia but today much better. I’ve had chest pain as well.

Have you been told to stop taking it? If so, trust the process. Each day it gets better.

Chantelle9788 profile image
Chantelle9788 in reply toPinky20J

hi are you tapering down? Reducing dose? Or are you day 8 of not taking any bit of tablet? How are you feeling? Do you have any anxiety? I had chest pain and a fast heart rate when I was day 9 of halfing the tablet and my bp went up slightly. I now feel really anxious and want to get off it asap. Please let me know how you are getting on, are you keeping an eye on your heart rate?

Chantelle9788 profile image
Chantelle9788 in reply toChantelle9788

I have no energy and get breathless I think it’s from the bisoprolol so that’s why I wana get off it. Doctor said it’s ok, how come your coming off?

Pinky20J profile image
Pinky20J in reply toChantelle9788

not tapering down just stopped taking it. Have had breathlessness and chest pain and cardiologist wants to see if bisoprolol was causing it. Definitely getting better day by day. Keeping an eye on my heart rate and it does go up to 130 ish really easily but also comes back down quickly. It can make you feel anxious as that’s what I was told by cardiologist. You can keep messaging me if you like to help you through this?

Chantelle9788 profile image
Chantelle9788 in reply toPinky20J

yes please I would love your support if it’s something you don’t mind, my anxiety is through the roof right now and want to come of it after reading how bad the withdrawal is, and the longer im onit the worse it will be, some people how side effects coming off months down the line apparently. 😩I still haven’t been seen by cardiology I’m still waiting 2 months later. I’m worried to stay on them incase of any long term damage, but I think they are making me have no energy, headaches, and breathlessness. How long was you on them for? How is your chest pain now? What is your heart resting at?

Chantelle9788 profile image
Chantelle9788 in reply toPinky20J

how’s it going? Hope still going ok 😊

Have you discussed this with your doctor?

It's against forum rules to advise on medication changes...

Chantelle9788 profile image
Chantelle9788 in reply toCaptain_Birdseye

yes they said I can just stop, but tried to taper off for a week and head fast heart rate and chest pain again so back at full dose. Now I feel anxiety is through the roof

Captain_Birdseye profile image
Captain_Birdseye in reply toChantelle9788

That's to be expected when coming off a beta blocker... you become more sensitive to adrenaline (which the drug blocks from acting on the heart) so when you stop the dose you will feel the effects. Throw anxiety into the mix as well and the effect is increased.

Speak to your local pharmacist for advice on this... they are specialists in medicines and how they react in the body and may be able to offer solid advice. We can't advise on medication changes here unfortunately, and what worked for one person may not work for you.

Chantelle9788 profile image
Chantelle9788 in reply toCaptain_Birdseye

thank you, are you on a beta blocker?

Captain_Birdseye profile image
Captain_Birdseye in reply toChantelle9788

Sure am 🙂

Chantelle9788 profile image
Chantelle9788 in reply toCaptain_Birdseye

what ones bisoprolol? Do you get on with them or planned to come off them?

Captain_Birdseye profile image
Captain_Birdseye in reply toChantelle9788

I tolerate them just fine, but think I'm one of the lucky ones. Cold hands and a runny nose is about the worst of it.

I was switched from bisoprolol to high dose propranolol as I needed them for migraine prevention... but took propranolol years ago for anxiety so knew it was fine.

Chantelle9788 profile image
Chantelle9788 in reply toCaptain_Birdseye

was the switch hard or do you just swap them over? Maybe I could try a different one?

Captain_Birdseye profile image
Captain_Birdseye in reply toChantelle9788

I just swapped and don't remember anything nasty... might be worth asking your GP if it's an option

momander profile image
momander

Hi,When you day you tried to taper off, are you doing this yourself or under GP supervision?? I would definitely mot advise coming off something like this on your own as it could be really dangerous for you.

Chantelle9788 profile image
Chantelle9788 in reply tomomander

my gp said I could stop but I choose to taper off

Engineer46 profile image
Engineer46

Hi Chantelle and welcome to the forum.

Your bio doesn't tell us anything about you, so it is difficult for anyone to provide any meaningful answers to your question right now.

For example, it would be helpful to know what heart condition you have been diagnosed with and when that was; what drugs you are taking and what dose; how long you have been taking bisoprolol and whether you were originally taking a higher dose.

This would allow people with a similar condition and drug regime to share their experience, which is what the forum is about.

1.25mg of Bisoprolol per day is the lowest dose normally prescribed and this seems to reduce heart rate by around 10 bpm for many of us.

The highest normal dose is 10mg per day and at this level you would taper down over a period of time to come off the drug At only 1.25 mg, most would simply stop taking it unless advised otherwise.

However, we are all different and some are very sensitive to the drug. Some find it better to take it at night rather than in the morning and some split their dose between the two, although splitting that tiny 1.25mg pill must be a pain!

Let's hope that the forum is able to help you through your problems.

Best wishes,

Paul

Chantelle9788 profile image
Chantelle9788 in reply toEngineer46

hi I’m sorry, I haven’t been diagnosed with a heart condition, I was just having episodes of fast heart rate and chest pain doctors saying it’s anxiety/panic attacks. I since found out I have folcate deficency so think it’s that that was causing it. I’m still waiting to be seen by cardiologist it’s been 2 months of waiting so no tests have been done except ecg which they say is clear just fast high hr. I’ve been onit around 6ish weeks. I’m worried to stay onit incase of long term effects and I’m feeling breathless and no energy and I think it’s causing it. I halfed 1.25 for 8 days, day 7 I didn’t move off sofa had no energy to do anything. Day 8 could feel my heart racing, felt anxious, had chest discomfort and bp was raised, had ecg at doctors said ok. Then day 9 I went back to full dose of 1.25 as was scared and the chest discomfort is quite scary think it sets off anxiety, I’m now 5 days back at full dose and feeling anxious still. I’ve got a doctors appointment later on today I’m going to ask there advice, as one dovtor said I could just stop but clearly not

Engineer46 profile image
Engineer46 in reply toChantelle9788

Thank you for the background information.

Folate deficiency can produce many of the symptoms that you've reported and requires prompt treatment, so I hope that the doctor's appointment today is positive for you.

Best wishes,

Paul

Chantelle9788 profile image
Chantelle9788 in reply toEngineer46

I’ve been taking folic acid from doctor for the last month. No changes yet tho.

Chantelle9788 profile image
Chantelle9788 in reply toEngineer46

doctors appointment was useless, said nothing else they can do for me. They have referred me to cardiologist in April so just a waiting, doc told me to ring them so I did and I’ve spoke with secretary who is guna speak to consultant to hopefully get me seen sooner for scan. Doctor I seen today was not supportive I’ve never seen her before she didn’t understand. I asked if the low folcate can cause my symptoms she said she don’t think so as many people who have low folcate don’t even realise. That’s annoyed me as I feel so awful and I was never like this before. She didn’t care about my breathlessness or sats dropping at times, told her I think this ain’t helping and I wana wean off she said that’s upto me i can come off it in a few weeks of tapering but really she wanted me on a higher dose

Sheffield55 profile image
Sheffield55 in reply toChantelle9788

This is exactly my situation. I have no heart issues just anaemia which made me suffer a very fast heart rate 130BPM.

I saw my cardiologist he said it could also be anxiety. Placed me on propanolol 20mg a day and Astyfer blood syrup. I started taking the medication and my life has never been thesame again. I get tired easily. The breathlesness and my anxiety level has increased.

I chose to taper down the medication by splitting it 10mg twice daily. I am currently on 10mg once a day. It's a very difficult drug to come off cos of bad withdrawal symptoms.

I have decided to keep taking 10mg a day till my body heals on its own.

Chantelle9788 profile image
Chantelle9788 in reply toSheffield55

what is your heart rate now you have been tapering down? How do you feel? Are you getting chest pain? I am and also strange body sensations, I’m sure these beta blocker make anxiety worse to come off. It’s such a struggling I feel like my heart aches too because of them.

Sheffield55 profile image
Sheffield55 in reply toChantelle9788

My heart rate after tapering is 87BPM However it goes up after the 10mg wears off because of the adrenaline rush. I try to maintain calmness by relaxing till when my next dose is due. Sometimes I cry myself to sleep. When I was on 20mg I could barely function. I couldn't stand properly or walk properly cos my body was shaky. I felt very faint. Tapering down to 10mg has enabled me to function better but the chest pains come back once the medication wears off. I believe one day my body will heal itself and I won't be needing the meds anymore. Crying helps me too to unburden.

Chantelle9788 profile image
Chantelle9788 in reply toSheffield55

I would be happy with that heart rate after tapering down, my was 143 last week a week after a halfed dose 😩 so went back to full dose next day as was scared. It’s the chest pain that’s a trigger too isn’t it, I hope our body’s do heal in time Once fully off them, all I’ve done is cry this week so I know the feeling 😢 when I try taper again I’m guna do it slower and and have have plus a quarter of that makes sense so 3/4

Sheffield55 profile image
Sheffield55 in reply toChantelle9788

I also do alot of watermelon juice and cucumber juice. I don't eat salt too. Eating right also helps in the tapering process too. Cry as much as you can. It sure does help.

Chantelle9788 profile image
Chantelle9788 in reply toSheffield55

keep in touch with how you get in, goodluck

Sheffield55 profile image
Sheffield55 in reply toChantelle9788

Thank you

Bibilovski profile image
Bibilovski in reply toEngineer46

Useful information 👍

Efka profile image
Efka

Following as I would love to come off bisoprolol also. I have found a few interesting pages online (no access now sorry) speaking of it’s not as easy as just halving and halving (aka it can take time for many to come off) and yes sadly many having withdrawals, doesn’t seem a health/safety issue apart from of course discomfort and patience… wishing you well

Chantelle9788 profile image
Chantelle9788 in reply toEfka

how long have you been on it? And how much? What you on them for? Let me know if you do decide to come off and how you are. I’ve read there horrible to get off with side effects and anxiety

Qualipop profile image
Qualipop

I was put on the same dose of bisopralol after my heart attack. I persevered for 3 months but it was dropping my BP so low I could barely get out of the chair so my GP tpld me to stop it and try Candesartan. I stopped immediately with no side effects at all. The Candesartan didn't suit me either so that was also stopped with no problems. We are all different with differing conditions so you really need to speak to your GP.

Chantelle9788 profile image
Chantelle9788 in reply toQualipop

have they found a beta blocker to suit you now?

Qualipop profile image
Qualipop in reply toChantelle9788

NO, I take nothing although I may have to in a year or soas my BP is creeping up. It used to average 120s/72 but is creeping into the 130s now. Still just acceptable for my ag e but for how long?

Chantelle9788 profile image
Chantelle9788 in reply toQualipop

can always try magnesium that’s just a vitamin and helps, I take magnesium glycinate after tea

Lkdrt profile image
Lkdrt

I was on Bisoprolol 1.25 wean your self off very very slowly.Now after4months on one quarter tablet.

Chantelle9788 profile image
Chantelle9788 in reply toLkdrt

what was you put on them for? Do you have anxiety? How do you cut tablet do you use a tablet cutter?

Lkdrt profile image
Lkdrt in reply toChantelle9788

I had a triple bypass surgery.I used a very sharp knife.It took a while to cut it properly.

Chantelle9788 profile image
Chantelle9788 in reply toLkdrt

thanks for the advice, I’ve ordered a tablet cutter not sure when I’m guna start to taper again atm but will do it super slow next time quarter at a time. Hope you manage to finally come off completely in time

Chantelle9788 profile image
Chantelle9788

what was you on them for? And what heart condition do you have? How was it coming off cold turkey what happened? I don’t plan on yk cold turkey just interested what happened? Let me know how you get on with coming off I hope it goes ok for you

Cymrucurious profile image
Cymrucurious in reply toChantelle9788

I was told yesterday I can come off them ... by my cardio rehab team from paramedics to general care - nursing to consultants my follow up in North Wales has been absolutely AMAZING I'm so very grateful and wish that was the case for everyone... I digress sorry. Bisoprolol I'm on 5mg a day, been taking that since early February.The advice was to wait until my GP is notified before and decrease and I've got 2.5 tablets in my possession!

It was made very clear it's vital to decrease slowly and monitor responses ... if all is well the dose will be decreased to 2.5 for a period of 8 days then a 1.25 dose for 8 days, I should then if all is well I will be able to nock them on the head.

My diagnosis was Takotsubo, potentially affected by adrenaline and bisoprolol is prescribed to combat those effects, so I have mixed feeling about my next few weeks ahead!

I think you could possibly speak to your pharmacist tho potentially for confirmation?

It's good to talk this stuff out here but remember (as previously mentioned) we are all unique, have very different conditions and medication...

this is just my 2p worth.

Best of luck x

Chantelle9788 profile image
Chantelle9788 in reply toCymrucurious

let me know how you get on tapering off, I hope it goes well, I’m currently sat in a+e as my sats been dropping to high 80s I do feel sob too

Cymrucurious profile image
Cymrucurious in reply toChantelle9788

You are having a poo day ... im so sorry Keep in touch and I'll do the same x

Chantelle9788 profile image
Chantelle9788 in reply toCymrucurious

I will do, please let me know how tapering off goes, Goodluck

Cymrucurious profile image
Cymrucurious in reply toChantelle9788

I sure will x

Chantelle9788 profile image
Chantelle9788 in reply toCymrucurious

hey have you started to taper yet? How’s it going?

Chantelle9788 profile image
Chantelle9788 in reply toCymrucurious

hey, have you started tapering yet? If so how’s it going? I’m down to half a 1.25, had chest pain a bit and now heart rate is around 100 resting

Chantelle9788 profile image
Chantelle9788

oh no I’m sorry about that, glad your ok tho, and that your ok when you fully get off them, keep me updated, best of luck x

Hjiu profile image
Hjiu

I had a STEMI November 2021. I was put on a cocktail of drugs with Bisoprolol being one of them. I was also prescribed Ramipril. I came off Ramipril as my BP was low at around 98/64. I started out on 10 mg daily of Bisoprolol which was gradually reduced to 1.25 daily as this was all I needed due to my BP and HR being normal. I have suffered with dizziness for the past 15 months or so and recently was told by my cardiologist to stop the Bisoprolol. After a couple of days I felt awful. I got angry easy and felt anxious. I then started with chest pains and pains down my arms. I ended up going to A & E where I had 3 ECGs and Blood done. All the tests came back good. I was told to start the Bisoprolol again which I did. I now feel better but I still get dizziness. I might try again or I might just live with the dizziness 😩

Chantelle9788 profile image
Chantelle9788 in reply toHjiu

it’s not good Isit, do you get any chest pain or discomfort while on the bisoprolol? What was your heart rate when you come off it? And how was it back onit? I’m wondering if it would have got better with time being off it? I get dizziness at times too I’m sure it’s the bisoprolol

Hjiu profile image
Hjiu in reply toChantelle9788

I do still get chest pain and after stopping the Bisoprolol my HR increased by around 10bpm

Hjiu profile image
Hjiu in reply toHjiu

I am now however back on them. Resting HR is around 57. BP is around 115/75

Chantelle9788 profile image
Chantelle9788 in reply toHjiu

how long was you off it for?

Hjiu profile image
Hjiu

I forgot to mention that the cardiologist has recommended I have a nuclear stress test to check for blockages.

Chantelle9788 profile image
Chantelle9788 in reply toHjiu

do you find it like blocks your nerves in body? Like while you was coming off so you think it was making you feel limbs/body parts have sensations like waking up? Adrenaline rushes?

Potter5678 profile image
Potter5678

I was on bisoprolol 2.5mg for only 27 days. It was prescribed for high blood pressure. I suffered from numerous serious side effects which eventually ended in a trip to a&e with severe abdominal pain, violent shaking, nausea, pounding heart, arrhthmia and sleeplessness amongst others. They advised me to cease taking bisoprolol without tapering off the dose. I then suffered from huge surges of adrenalin and anxiety for several weeks, unable to to any activity without my heart racing. It was a very difficult time. I have been off the medication now for 3 months. I am still having periods of high adrenalin and am suffering with a lot of chest pain which is worse if I exercise. I have found the only way to get the adrenalin down to a tolerable level is to go for several short walks a day and put up with the pain. I have seen a cardiologist about the pain and had ECG and CT scan and all came back normal. Another trip to a&e with severe chest pain radiating up my neck, left shoulder, back and arm,and after chest x-ray and numerous blood tests which all came back normal i was accused of lying about my symptoms. I believe my case is quite extreme, as many have no problems on and getting off bisoprolol, but listen to your body. Your experience will be unique.

Chantelle9788 profile image
Chantelle9788 in reply toPotter5678

that is super scary, what is your heart rate? I don’t think this medication should be prescribed really

Potter5678 profile image
Potter5678 in reply toChantelle9788

My heart rate is about 60 to 70 bpm. It was, and still is, very scary, especially having not been given any answers to what I'm experiencing. The initial adrenalin surges after coming off bisoprolol are recognised by some as being expected, and cardiologist suggested about 5 to 6 days, so if you decide to stop taking them again, you should expect to experience this. I would choose a time when you are able to do nothing but relax for a week. Short walks are good to relax the body and mind. Good luck.

Chantelle9788 profile image
Chantelle9788 in reply toPotter5678

I was suffering with this and a fast heart rate before I started on it, being on it is making me anxious I’m not sure what to for best

Potter5678 profile image
Potter5678 in reply toChantelle9788

Only you can make that decision. It's your body and you need to be caring for it the best you can. All drugs have side effects. You need to weigh up whether you're able and willing to tolerate them against the improvement in your health that they give. Others experiences will be unique to them. It's what this drug is doing to and for YOU should help you decide if you want to keep taking them or not.

Chantelle9788 profile image
Chantelle9788 in reply toPotter5678

I think I have anxiety you know. I’m waiting on cardiology appointment for echo, when all clear and I’m doing cbt I will try taper off when ready if all clear

Potter5678 profile image
Potter5678 in reply toChantelle9788

I hope your tests results give you a way forward. I wish you good health for the future.

Chantelle9788 profile image
Chantelle9788 in reply toPotter5678

thank you for being kind 😊

Chantelle9788 profile image
Chantelle9788

how you getting on? All good still I hope

John3333333 profile image
John3333333

Your age, sex, size or the length of time you've been on 1.25mg bisoprolol doesn't matter. It is a tiny dose. You really don't need to 'taper off' 1.25mg.

Chantelle9788 profile image
Chantelle9788 in reply toJohn3333333

I have tried and failed

Chantelle9788 profile image
Chantelle9788

that’s great news glad it’s going well 😊

Chantelle9788 profile image
Chantelle9788

how are you now your off? Hope all is good 😊

Chantelle9788 profile image
Chantelle9788

how come you decided to stay on longer? I’ve started to taper again I took away just 1 quarter so I’m taking 3/4 of a 1.25

Chantelle9788 profile image
Chantelle9788

aw I definitely did get confused I thought it was Tuesday just gone

Chantelle9788 profile image
Chantelle9788 in reply toChantelle9788

how did stopping go?

Chantelle9788 profile image
Chantelle9788

I’m glad it got better for you, I went to a quarter today and feel abit dizzy but going to keep going for a week then stop, hopefully it’s just guna keep improving in time as it comes out our body’s.

SC81 profile image
SC81

hello, did you came off biso?

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