Hi, I was diagnosed with the above 2 years ago. It has resulted in various heart issues and a need to have a Defib and Pacemaker fitted.. ATTR has no cure. Would be grateful to hear from anybody who has the same diagnosis to pass on personal experiences
Kind regards
Neil
Hi Neil ...Sorry to hear your diagnosis. I bet it was a shock to you and your family .
My dad has been diagnosis with cardiac amyleiod attr .
My dad has always been a fit healthy man . This all started when my dad fell down the stairs , then followed up with heart tests .
My dad has had a defibrillator because his heart rate was 37 to a min.
Have you been to London yet ??? Nac
My dad is on a trail at the moment for his . They say there’s no cure but this medicine will pro long his life .
It’s been a terriable shock to us all .
Lucy
Had stent inserted July then again in December, chest pain has never truly gone away, 
Blood pressure using fitness tracker
Mitral valve regurgitation
Possible vaccine trial 
Heart attack and heart failure 
