trials for microvascular angina

[Yellow-Button]

Hello friends, I am a new member but find the information here invaluable, thanks. My G.P. has been very supportive but is not experienced in Microvascular disease but finding it very difficult to get Hospital appointment. Has anyone been involve in trials as my G.P. has suggested the Prize trial as an idea.

[Milkfairy Heart Star]

Hi Yellow Button

The PRIZE trial was suspended due to the Covid crisis but is about to start up again soon.

I suggest you ask your GP to contact the Principal Investigator of the trial Prof Colin Berry.

The contact details and sites taking part can be found in this link.

Your GP can also refer you to a Cardiologist at one of the trial sites.

clinicaltrials.gov/ct2/show...

[Yellow-Button in reply to Milkfairy]

Thank you Milk Fairy, I am not sure if I am up for a trial but G.P. thinks it is a good idea although according to this site there is a few medications that have not been offered to me.

[Milkfairy Heart Star in reply to Yellow-Button]

I would suggest that you ask your GP to refer you to a Cardiologist with some experience treating Microvascular angina .

As you are in Scotland ask your GP to refer you to the trial centre in Glasgow where there are some Cardiologists very experienced in treating patients with MVA.

[Yellow-Button in reply to Milkfairy]

Yes thank you, I will ask him to do that.

[Milkfairy Heart Star in reply to Yellow-Button]

Good luck.

Come back and tell us how you get on

[Brussels in reply to Milkfairy]

It can be very difficult to get out of area referrals in Scotland. We don’t have the right to a second opinion or referral to the Consultant or hospital of our choosing.

[Milkfairy Heart Star in reply to Brussels]

In England the NHS Constitution gives patients more rights to choose.

Healthcare is a devolved responsibility to Scotland, Wales and Northern Ireland.

I don't feel I even want to go there as they say on the forum on this subject😬😳

[Brussels in reply to Milkfairy]

Good decision. 😀

[Sunnie2day in reply to Brussels]

Hiya! I'm also in Scotland (NE, up the glens). My GP and cardiologist both are happy to refer me if I ask. For example, my cardiologist wants me to go to Glasgow but as the queue is miles long and I'm doing rather well on the current meds regime, there is no rush.

I think it may depend on the trust and the medic - the first surgery I registered with when I retired home in 2010 was not so amenable. I moved house and surgeries and the difference has been life-changing in a very good way.

[Brussels in reply to Sunnie2day]

Glad to hear that but it is very much a postcode lottery in Scotland.

[Sunnie2day in reply to Brussels]

Pretty much what I said, so yes, a postcode lottery dependent on the trust and the medic.