Wolff-Parkinson-White

[RunningWolf]

Hi,

Newbie on here.

Been recently diagnosed with Wolff-Parkinson White Syndrome and scheduled for an ablation next month. I’m managing to control my SVT’s (only had a handful) with the Valsalva manoeuvre and was wondering if anyone has managed their symptoms this way long term rather that having an ablation?

[jimmyq]

I have never heard of this condition before or the "fix". I hope you get a more permanent fix for it.

[Milkfairy Heart Star in reply to jimmyq]

Valsalva manoeuvre

Hold your breath with mouth closed and nose held try and blow out your stomach and bear down at the same time.

It is meant to help stop heart rhythm problems.

Can't quite remember the history something to do with clearing pus out of an infected ear.

[Milkfairy Heart Star]

Hi Running Wolf

Welcome to the forum.

My husband uses valsalva manoeuvre to help manage his atrial fibrillation.

I suggest you have a look at Arrthymia Alliance they have some in depth information about heart rhythm problems

heartrhythmalliance.org/aa/uk

The BHF helpline line is also another good place to find some further support.

bhf.org.uk/informationsuppo...

I hope this helps. It is not a common condition however I am sure someone with a lived experience will be along at some stage to share their experiences with you.

[JoSte]

Hi Running Wolf! I have been born with the very same condition. I suffered with frequent and prolonged SVTs since school years, spent most of my high school years in and out of hospital. At the age of 18 I finally had my first ablation but it was early days for this procedure. Medication never worked for me, I suffered terrible side effects from anything we ever tried (beta blockers, flecanaide etc). Long story short - I’m 38 now, had my fourth ablation last year and I feel great! The machinery and knowledge has changed so much over those 20 plus years it’s like a walk in the park 😊 I’m enjoying running again and spending lovely family time with my husband and 3 kids. Every case is different but I’d say - listen to your cardiologist, ask lots of questions and this condition is treatable and manageable so good luck!!

[RunningWolf in reply to JoSte]

Thanks JoSte, good to hear from someone else with the same condition and that you are doing so well. I am talking it through with my cardiologist next week so will hopefully have the answers to all the questions going round in my head 😊. Hope all is well with you.

[Steviegmo in reply to JoSte]

Thanks for sharing this. My 10 year old daughter suffers from WPS and is due an ablation next year - she really wants to hear from people who have "Been through it" so she knows it works