Wolff Parkinson white syndrome

[Petal30]

Hi my names laura, my son is 6 weeks old. I took my son to GP as he was having poor feeds and being sick, was told by GP that morning it was reflux and to keep trying him with fluids. however my concerns was that he would get dehydrated as he wasnt taking any milk/nappies wernt wet etc I called the doctor again as i still wasnt happy after lunch who then got the on call doctor to phone, he advised me to keep trying him with milk and wouldnt listen to my worries of him being dehydated again. I went against GP advise and took my son to A&E to find he was in SVT with a heart rate of 250. They said if i hadnt of taken him he would have died. He was in resus for a while before being blue lighted to bristol childrens hospital who were absoutly fantastic with him being in intensive care. It has come as a real shock to myself and my family with whats happened and wondered if there was any other people with Wolff Parkinson white syndrome who would like to chat or who have similar diagnosis. Many thanks laura x

[Milkfairy Heart Star]

Hi Laura,

Welcome to the forum.

Thank goodness you allowed your mother's instinct to take over.

It must have been such a shock and naturally you will be feeling anxious.

The Arrhythmia Alliance has some good information including children 's heart rhythm problems. I hope this helps you find some further support.

heartrhythmalliance.org/aa/uk

I wish your baby son a speedy recovery he is in the right place getting the care he needs because you made the best decision ever to take him to A&E.

[christina1947]

Laura this is a unimaginable hard time for you but your precious baby boy his in the hands of wonderful clever doctors who remember have seen this before and will know exactly what needs to be done to make him better and they will do it. Take care of yourself because you will be back to night feeds soon xxx

[jimmyq]

Wow! I hope he gets better soon.

[daisy2311]

I have SVT but wasn't diagnosed until my 30s. You should be proud that you went with your instinct, I always encourage everyone on this forum to do the same and push with the doctors. It must be scary now, but this is a manageable condition, the important thing is now the doctors know, they can manage it. There is lots of advice leaflets on BHF website, so I would start there. The helpline is also very good if you need to talk through things.

[thehypnotist]

My nephew was diagnosed with this in his early thirties. It was a scary time for him. Several years on, he leads a full and active life traveling regularly to the USA in particular. I understand it's quite a rare condition, difficult for a GP to diagnose. Best wishes to you both.

[Steviegmo]

Hi, my daughter (10 years old) has just been diagnosed with WPW syndrome. She is due to have an ablation next year but wants to hear from people who have been through the ablation as she is very worried. I hope all works out for you though

[Remu86]

My 12 year old son has recently been diagnosed with svt and wow. Under the care of great ormand st who have been amazing. We are awaiting appointment for ablation now

[GlasgowGirl1968]

Om my goodness Im so glad you took your son to the hospital when you did. Mothers intuition is best. I hope he has a good recivery. I also have Wolfe Parkinsons but did not get diagnosed till my 30's. Im 53 now and just had an ablation that wasn't sucsessful. Im on medication and that seems to control it for now. Im doing my research into it and any advice out there is much appreciated and so helpful. Thanks