Hi guys
Im 33 and have postpartum dilated cardiomyopathy. I recently had a defibralator fitted and gave really struggled since with tiredness and hardly able to walk the length of myself before being out of breath
Ive applied for a blue basge (being investigated at the min) and also pips to see if i can get some help and maybe get a cleaner as its so difficult! I have a consultation about this this week and im so scared!
Has anyone had one of these initial meetings and know what happens?
Hi Kimbojim,
I am sorry to read about the challenges you are facing.
I have a PIP and Blue Badge.
During your assessment be honest and tell them how it is on your worse day.
I suggest you contact Citizens Adive for support. It can be very stressful applying for this benefit.
I found the information on the link below very helpful in telling me how to fiil in the dreaded 40 page application form and what to expect at the interview.
Good Luck!
Hi I so sympathise with you, I have dilated cardiomyopathy and heart failure, I recently got pip and the blue badge came with it automatically, what a difference it makes, I wouldn't advise filling out the form yourself, my council, I live in Scotland, has an advice works and the girl was fantastic she filled it out for me, the citizens advice bureau are the same and it's definitely worth it, she advised me to get letters from my cardiologist and gp to say I can't work, which I duly got and I think they helped a lot, I had a home assessment which again I thought was better, tell them about your worst day, when you can't walk, can't breathe etc, it was very stressful try and make sure someone is with you, to open door and help with questions when the mind goes blank! Please don't hesitate to message me about anything I asked everyone for help and it got me through, mine is for a cleaner, gardener and I can now get any kind of aids I need for my house, take care and keep me posted char xx
Thanks for the advice! Ive prob messed it up already coz i filled it in myself and meeting is tomorro!
Couldnt beleive it when the blue badge had said they were investigating it i thought id have straight away got it!
Im still working bit struggling with cleaning etc its all too much!
Let me know how it goes, I wish you luck, just don't say to them how you feel on a good day, they don't take it into account that the bad days out way the good ones, take care xx
Hi Kimbojim - here's some further information on sources of support if you're not sure what to expect during your consultation: bhf.org.uk/informationsuppo...
You can also talk to our cardiac nurses, they'll be happy to chat things through with you. Call 0300 330 3311 or email hearthelpline@bhf.org.uk. Really hope this helps.
I had a home visit assessment earlier this year. For me the most telling thing was the Assessor telling me why was I claiming as I had only had heart trouble going back less than 6 months. She was gobsmacked when I told her that was certainly incorrect as had a history going all the way back to 1997 and treatment since had consisted of quad CABG and 3 procedures for stents.
Assessment was then over pretty quickly after this revelation and some 10 days later received a letter telling me I had been successful for both Daily Living & Mobility. They had had a letter from Cardiology dated October 2017 and took this to be the start of my illness, even had to tell them what certain medicines were for as they had never heard of them!
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