Wolff Parkinson White - SVT - Untreat... - British Heart Fou...

British Heart Foundation

54,701 members34,238 posts

Wolff Parkinson White - SVT - Untreatable.

wpwmum profile image
2 Replies

Hi! I’m a 31 year old mum with a daughter (14) who has just had her second EP study with ablation. Sadly, this didn’t work.

Her surgeon has said that it’s a complex case with her pathway running from the inside of the heart epicardially - making it virtually impossible to treat using catheter ablation, and at present, there’s nothing else they can do without advances in medical technology.

She’s currently on 2.5mg Bisoprolol twice a day, 125mcg Digoxin twice a day, 8mg Magnesium (1mmol in 1ml oral solution) three times a day. Until she resumes normal activity we won’t know if these drugs are effective or not. They’re discussing using prepafenone or amiodarone if the digoxin doesn’t work effectively to control her regular SVT episodes.

I’ve been doing research on WPW and haven’t come across any information about what happens if ablation doesn’t work and the person has to live with this, potentially, for the rest of their lives.

Right now I’m gutted and heartbroken for my daughter and obviously need to process this information. I was told to join this community by the BHF, in hopes that there’s someone out there that is in a similar position.

Written by
wpwmum profile image
wpwmum
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Helen_BHF profile image
Helen_BHF

Hi wpwmum and welcome to the community :) I'm sure other Mums will be able to share their experiences - really hope this helps.

wpwmum profile image
wpwmum

Thank you, Serg12.

Unfortunately, Flecainide didn’t work for my young lady. She was still suffering with SVT constantly, just at a lower rate than normal. Propafenone may or may not do the same thing as it belongs to the same group of drugs.

With the bisoprolol and digoxin she is still getting episodes of SVT, some severe and prolonged, so looks like that’ll be changed sooner rather than later.

Did you find yourself getting any SVT episodes on Flecainide?

Not what you're looking for?

You may also like...

Wolff-Parkinson-White

Hi, Newbie on here. Been recently diagnosed with Wolff-Parkinson White Syndrome and scheduled...
RunningWolf profile image

Wolff Parkinson white syndrome

Hi my names laura, my son is 6 weeks old. I took my son to GP as he was having poor feeds and being...
Petal30 profile image

svt ectopics

I started getting svt to my early 20s, which was only short episodes. Didn’t know what they were...

Svt and cathetered ablation

Hi, I'm just after any information or experience from others about a cathetered ablation for SVT?...

Continued Weight loss

Hi all, hope you are all well as you can all be, I was diagnosed with heart failure back in...
Putterguy profile image

Moderation team

See all
HUModerator profile image
HUModeratorAdministrator
Luke_BHF profile image
Luke_BHFPartner
Amy-BHF profile image
Amy-BHFPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.