Shock diagnosis for daughter

[Foxey2]

Morning all

As some of you know I was diagnosed with AFib last year and had an ablation October 2021, I’m now undergoing further investigation (waiting for an echocardiogram and cardiac angiogram) anyway my eldest daughter (age 23) has been pestering her Dr for tests due to family history and palpitations (she’s been told the last 3 years it was anxiety 🙄)

The Dr finally arranged for her to have an echocardiogram and she got a call yesterday to say she has:

Pulmonary balance regurgitation

Tricuspid valve regurgitation

And a murmur

She’s been referred to cardiology and has to wear a 72 hour holter, I can’t believe she’s been dismissed all this time, has anyone else got experience of this and will she need an operation etc?

Should I be concerned about my other children (daughter 21 and son 8) there seems to some sort of a genetic thing going on here

Sorry for the long post but I’m a bit shocked at the moment

Thankyou for reading

[Hidden]

Hello

I am so sorry about your Daughters diagnosis it must have been a shock and of course if you now feel this is in the genes you need to know how to make sure your other children are ok

I would talk with your Doctor how you might be able to go about this as I am not sure but one thing is if they start been diagnosed with anxiety you now know to push straight away for more tests

Hopefully though they will be ok but ask and please let us know how you get on x

[Foxey2 in reply to Hidden]

Thank you I will contact Dr

[Hidden in reply to Foxey2]

x

[RailRover]

I'd say it's certainly worth looking at the possibility of checking out your other family members. It certainly can't do any harm and could forestall a serious problem, or at the very least provide reassurance. Have a word with GP to see what's available in your area.

Additionally, another possible avenue, here in the Isle of Man (which is not in the UK) we have a charity that funds screening to find youngsters who might otherwise suffer a heart event. It started after a young footballer died here during a game. The charity is named after him, and it is Manx, but the people they fund to bring over to do the screening are another voluntary funded organisation who do the same thing in the UK.

If you follow the link below, there is a list of forthcoming screening locations - click "Cardiac Screening" around the UK. Hope this helps. c-r-y.org.uk/cry-screen-700...

[Foxey2 in reply to RailRover]

That’s really interesting, thanks for the info, I think anybody who has a history of heart problems in the family should have tests as standard. You hear so much now about children getting ill or dying from undiagnosed heart conditions or like my daughter being dismissed as anxiety!