SVT or Atrial Flutter

[Bcost318]

Hello, I'm new here! I was diagnosed with SVT around a year ago after ECG's and monitors. I had the radio frequency ablation which was unsuccessful as they wasn't able to find what they was looking for but my doctor was confident it was SVT. I have recently gone back as the palpitations seem to be getting worse and the side affects are getting stronger each time, my doctor now seems to think this is Atrial Flutter. I have back for another appointment and another monitor in the new year but have not been told much about Atrial Flutter and there isn't many posts regarding this, has anyone been diagnosed with Atrial Flutter that can give me some information on how i'm supposed to be dealing with this as i feel like i'm not getting anywhere with my doctors. I just want to add for two years my doctor's kept saying it was anxiety which i knew it wasn't, moved doctors because of this and have had to fight and fight for tests to be done, i have recently turned 24 and just fed up now!! Any help or information would be great. Thanks

[lettingoffsteam]

I don't have atrial flutter but I do get SVT.I also know what it's like to have everything put down to stress.I hope that after two long years they finally pin down what is wrong with you and treat appropriately.

[Bcost318 in reply to lettingoffsteam]

Thank you for replying, I have my fingers crossed at the next appointment they may finally take me seriously but I feel like they won’t. Not sure where to go from there if they don’t listen to me! Don’t know why I have to keep fighting for them to listen to me.

[Sunnie2day]

I can't speak to your specific condition(s) - I have different multiple heart conditions including one diagnosed when I was still in primary school (Rheumatic Heart Syndrome).

But I can say two things: I'm a 63yo female and have to say over the years I've noticed being female despite having multiple heart conditions including the one found in childhood usually means patient concerns are (what's the nicest way to put this?) dismissed owing to being female and being young - I've noticed since hitting my mid-late 50s I am better heard by the medical professions I come into contact with.

Regarding your specific conditions, have you seen these BHF fact sheets and downloadable booklets:

bhf.org.uk/informationsuppo...

bhf.org.uk/informationsuppo...

I know the one for SVT is aimed at parents of children but it contains a mother-lode of useful information about the condition and gives contact details for further sources of information.

[Bcost318 in reply to Sunnie2day]

Thank you for replying and thank you for the links I will take a look at these. I’m glad I’m not the only one that feels like I’m not being heard properly! I did put my foot down and say I didn’t want to take tablets without actually knowing what was wrong with my heart first, I don’t think it’s asking a lot but due to the fact I’m “young” they just feel like I shouldn’t have anything serious wrong with me, it’s just amazes me how much I have to fight for an appointment and to try and have some tests done!

[lettingoffsteam in reply to Bcost318]

For years I was told that my palpitations were due to anxiety but I agree that women can be dismissed.Even when I clicked an impressive bp of 244/133 in March with no bp history a consultant said that in his opinion was a strong factor.Hmm that's some anxiety there!!!