Hi I'm Teriny.

[Teriny]

I have had severe psoriasis since I was 15 I'm now 44. My scalp ears and hairline are the worsted it is plaque psoriasis I have it is also covering most parts of my body. My nails are pitted I have had most treatments out there creams,lotions, shampoos. The light treatment tablets I find Elecon cream is great for my body but it is a steroid and I have been using it for years all though I was told to stop as I new myself I have been using it to long and it thins the skin. I would really appreciate any help about creams that work for ears scalp and hairline so look forward to hearing from you. Thank s Teriny. XXXX

[Hidden]

It's hard treating the scalp isn't it? I'm running late this morning but will take a look at some of the products I was given for my scalp later and get back to you this evening.

I'm thinking that you probably know a lot more about all this than I do though and would guess you're mainly after a recommendation pure and simple. So just to clarify, are you still willing to put a topical steroid on the scalp, ears and hairline? Or are you looking for something to shift the plaques ..... or an emollient .... or all of the above?!

[Teriny in reply to Hidden]

Hi thank you for taking the time to reply back to me. All of the above and anything else you can recommend I am at a stage I will try anything as I have no life. As I am so embarrassed I try to keep it hidden from people as they stare they think it's contagious I lost most of my friends as I didn't want to go out think they where just fed up with it in the end. So any help is so much appreciated thank you. XXXX

[BonnieSue]

I've used Desonide cream 0.05% for years on my scalp or face for years without any trouble. The spots clear up in maybe half a day. Longer if it's all a bad outbreak.

[Teriny in reply to BonnieSue]

Thank you so much for replying to me I haven't had this 1 or heard of it so I'll ask my dermatologist thanks again. XXXX

[Teriny in reply to BonnieSue]

Hi does it clear up for a while or are you using it all the time thanks. XXXX

[BonnieSue in reply to Teriny]

I only use it as needed. Often I don't need it, but in the past I have had some rough weeks where I used it every day. Today I use it on slightly red areas no one else would even notice but I know that they might develop into something bigger and I want to stop them before they become worse.

[Teriny in reply to BonnieSue]

Thank you for your help. XXXX

[Janemac1]

I have used many creams over the past 15 years but the only thing that cleared up my scalp, nails and body psoriasis was Humira. I tried Enbrel but it didn't work. The costs for Humira were partially covered by my work benefits and the pharmaceutical company leaving me with a smallish copay. Worth trying!

[Teriny in reply to Janemac1]

Thank you for the reply can you buy this or can you get it from dermatologist. Xxxx

[Teriny in reply to Janemac1]

Thanks for your help. XXXX

[Hidden]

Hi Teriny, I know your question about Humira was for Janemac1, but I can answer that while I'm here. Humira is a biologic drug which is injected, and it would have to be prescribed. But that overlaps with what I was thinking which was whether your derm has ever prescribed drugs for your psoriasis? As I understand it there comes a time when this type of treatment may be considered for moderate to severe psoriasis.

For those of us here who have psoriatic arthritis, the drugs often come as standard for PsA and can have spin-off benefits for the skin disease. But with your persistent and extensive psoriasis drug therapy may well be an option.

I've just found the last batch of products my derm prescribed for my scalp. There's Sebco, which is a paste that softens scalp plaques overnight, Dermax shampoo for lifting the plaques the next day and a potent steroid foam, Clarelux for applying a couple of times a week. But I'm thinking you're in the US(?) and if so the brand names might be different. And anyway, care is required .... some of these things are pretty strong.

When my psoriasis was truly driving me round the twist I was under a dermatologist. Even so, I had to get quite assertive and ask for a concerted plan, a daily or weekly regime that even an idiot like me could follow. That seemed to click with my derm and she made sure we went through the exact routine together, bit by bit and then she wrote it down for me. Prior to that I'd had one product after another prescribed with very hurried instructions about how to use them, where to use them etc. etc.

It rather sounds like your dermatologist needs a bit of 'encouragement' to get with the programme. Your psoriasis sounds bad, you shouldn't have to research steroid creams etc. yourself, surely?

[Teriny in reply to Hidden]

Hi no I'm from the uk think I've had every cream, lotion topical, and steroids out there I had tablets also. It looks like it's clearing well then back with a vengeance. I was attending dermatology 3 times a week for 12 weeks for light treatment I'm just so fed up and depressed with it all I also have psoriatic arthritis to. Feels like I'm just going round in circles. Like you I had a very stricken regime 3 times a day for weeks I would just like to be rid of it all together but I don't see that happening. It affects every part of your life well it's more like an existent. Thank you for your help very much appreciated and will definitely be having a long chat with my dermatologist thanks again take care been great to speak to someone who is going through the same thing. XXXX

[Hidden in reply to Teriny]

Sorry, I made assumptions, the wrong ones!

Are you having treatment for your PsA? The fact that you'd not heard of Humira made me think you'd been handling all this on your own for a while. But perhaps you've been dealing with this for so long without seeing improvement that you've lost interest in the drug options etc.

Perhaps you would qualify for Humira or another biologic, that might just be a game changer for you.

My rheumatologist and dermatologist worked together last year to sort things out as far as possible. I think that's how it should be but the standard of care seems to vary so much. It took me a while to find a good rheumy.

[Teriny in reply to Hidden]

Sorry for late reply I have a new GP and he was going through my case load of files as I couldn't move my shoulders, arms and knees were killing me he said from my file I have rheumatoid arthritis which I had an operation when I was 24. I have rods and pins in my right knee he also told me I do have psoriatic arthritis which I didn't no. He called the hospital will I was still in the room and demanded I get the proper treatment and appointments as I was in total agony . He couldn't give me anything as I have a lot of health issues but he seems to be on the ball about things he will call me at home to ask me how I am as he says there are a lot of worrying factors with my health so hoping I shall get some where now. Thank You postle2

[Hidden in reply to Teriny]

Basically sounds as if you've got a bit lost in the system and your great GP is trying to get you back on track? Thank goodness this is happening!

I for one will be watching this space, looking forward to you getting a clear picture of what's going on and a clear treatment plan that makes a real difference. So if you get a mo, let us know!

[Teriny]

Thanks and I definitely will keep you posted funny thing I didn't like this GP at first but I think it was starting all,over again as I was with my other GP since I was 16 but he is most definitely on the ball. XXXX

[annemason]

Hi Like you my psoriasis is the same for my scalp I use calcipotriol/betamethasone gel is for application to the scalp, but unfortunately it is steroid base. Initially used every day but now use alternate days.

[Teriny]

Hi I've had nearly everything out there but nothing has worked my GP told me to put coconut oil on my scalp wrap a plastic bag round your head then a towel when you go to bed put more coconut oil on and sleep with a shower cap on. Crazy i no then was hair with T/Gel shampoo for psoriasis just twice a week and you will notice some difference well I did you can buy it or get it on prescription I noticed improvement after the .first was. Hope this helps.. XXXX

[Teriny]

Hi does any one get problems with feet like Vikki below or inside the .ears any advice please .Thank s. XXXX

[lka2251]

I also have had psoriasis since about 18. Used all kinds of creams.Can't do other medication due to other health issues. I am 64 now and I think I have tried everything other than the oral medication and injection. I found a Bath soap and body cream at Walmart that has been doing great for me. My skin is almost clear. It is called Dr. Teals. it has Epsom salt. in it along with some other wonderful things. It is worth a try and it is like $5.00 each.

[lka2251]

Also for my hair the lady that cut my hair told me about Nioxin shampoo. Says they use it on cancer patients when there hair starts to grow back. Been using for a long time and nothing in my hair now. If you go to local beauty supply store they do have a couple of generics of Nioxin that i have used and they are good also. Now I am wondering if a lot of people that have psoriasis has CLL????? If so I wonder what the connection is???

[daveandlizsmith]

i have scalp psoriasis too and use alphosil think its spelt something like that lol its a 2 in 1 shampoo,conditioner which you leave on for a few mins after working into a lather you use it 2/3 times a week its always worked for me xx