I'm 59 and was diagnosed with psoriatic arthritis in 2012. At that point psoriasis actually came in useful for once as it was one mildly psoriatic toenail that clinched the diagnosis at the time. Blame brain fog, but it took a long time .... weeks, maybe months .... for me to remember the rash I'd had day in, day out for about 10 years and which had very suddenly cleared up about 20 years before the PsA diagnosis.
As is probably obvious, that long stretch of inverse psoriasis hadn't bothered me too much. Somehow I got used to sore armpits and it didn't itch. So I ignored it, didn't bother with the steroid creams, basically buried my head in the sand. And it didn't matter because it was mild.
Fast forward to the beginning of this year. I'm on Humira and had remained on Methotrexate to support it. Maybe I'm in the minority, but I quite like Mtx & it has always been useful to me if not exactly a game changer. Trouble was my liver began to object strongly to it and the ALT (liver enzymes) rose steadily upwards. So I stopped Mtx. Then all hell broke loose .... perhaps that's an exaggeration .... no, perhaps it isn't. I started getting psoriasis on my legs and scalp, then in my ears, then all over my body, on my palms, my feet, where the sun don't shine ... everywhere. And then to cap it all, my hair started falling out. Not thinning but big bald patches.
So to cut a long story short, both my rheumatologist and dermatologist decided that the most likely scenario was that stopping Mtx had triggered the psoriasis flare-up. I'm now back on Mtx and am going to have a liver scan to see if my liver is holding up or not.
Back in the day when I was young and carefree and had bright red armpits I probably didn't really need an online community, which is just as well as of course there was no such thing at the time. However, when the misery of serious itching, flaking and soreness topped off by the prospect of going bald hit me hard I did need support. My psoriasis is much better now and my hair is growing back. I realise I can't take the improvement for granted, so I just enjoy it for now.
You know, time was I really didn't understand how difficult psoriasis can be. But I certainly do now.