I was finally diagnosed with Behcet's after doing my own research! Scared but determined, I began searching images of genital lesions on the Internet until I found one identical to mine. It said Behcet's.
I made an appt. with my gyn and respectfully suggested (insisted) on a biopsy. Her first thought was Herpes but, I knew better! Thankfully, she was open minded and willing to consider that it could be something else. Two weeks later, the pathology confirmed "vasculitis, consistent with Behcet's." That lesion and the ones before finally had a name, Behcet's.
Of course, I still had to be seen by a "specialist" before a formal diagnoses could be made. My gyn felt I needed to be seen at a well known teaching hospital because Behcet's was such a rare disease. I flew to Johns Hopkins in Baltimore to finally get that diagnoses but only after reviewing my history of oral and genital ulcers, chronic uveitis, hypersensitivity to skin problems from simple bug bites to venipuncture. But, the most valuable piece of information was having had the biopsy that I had insisted on! I suppose I would still be wondering about the ulcers if it weren't for the information I obtained from the Internet! I am thankful and so grateful for the information on the Internet that helped me find the answers I needed! Step one was finding a diagnoses, step two was finding "Health Unlocked" to talk with others about the disease.