After a 2 year battle with my GP I eventually got to see a consultant.
It's been a rocky couple of years, first there was elation I wasn't mad and a raving hypocondriact, however that was short lived as the realization that I had a horrible and incurable illness soon followed. This left me depressed, especially as things with my health got worse and worse.
Then the lucky dips of treatments began...
Azathioprine, this was horrendous, white bloodcell count dropped far too low and I felt like death. Back to the drawing board, next a high dose on steroids and hydroxychloroquine too, which helped a little. Now I'm on methotrexate which again is helping and I'm still waiting for that wonderful place called remission to kick in.
I'm learning to live with my illness, it's not easy sometimes.
My career has almost disappeared. I'm a self employed fitness instructor which is not easy when your body doesn't work. I've had to make changes. Now a part time pilates instructor. I'm also enjoying the extra time I have at home spending time with my family, rather than being the bionic woman.
Some days I need to rest. I rest now now with my kindle and trashy magazines. Days I feel good I savour and try not to go mad.
The last 4 years have been a rollercoaster.