I am fairly confident that it is Behcet's, as I've had a couple of doctors say they suspect it but did not want to give me the diagnosis.
Around 16 months ago I was admitted to hospital for 7 days. Over a period of 5 weeks, my symptoms worsened and I went to hospital after passing out in the shower. It started with a flu which lasted two weeks. By the time I was admitted to hospital my symptoms were as follows:
Severe ulceration of mouth, esophagus, nose and genitals- I was unable to eat solids or talk for around 3 weeks. I had ulcers on my voice box.
I had inflamed ankles that stopped me from walking. I had acne like sores on my face and scalp. My eyes were sore and looked bruised. I had blurred vision for a short period of time.
16 months later and I have not had a flare that was so severe. I have ulcers in my mouth around 50% of the time - usually only a few at a time. I find that eating anything high in fat also causes this. I regularly get sore knees if I sit in a confined space like a train, car or plane for more than 20 minutes. I am regularly feeling slightly sick, weak and tired. I also have started getting blurred vision if I try reading - but it's also fine other times. I also recently had ulcer-like sores and rawness in my nose that lasted for 4 weeks, which was mildly painful, but more annoying.
I have been tested for everything the doctors could think of, from all sexually transmitted diseases, other auto-immune diseases (including Pemphigus Vulgaris), yet nothing returned positive. I also had plenty of doctors probe at me with endoscopes, biopsies, swabs etc. that ruled out anything that could be tested for.
Basically, I wonder if having Behcet's means that I WILL have regular flare ups, or do some people go years without, but still experience constant mild symptoms like I do?
Thank you very much!