I was recently told by the rhuematology team that I had possible Behcets. I suffer with mouth ulcers (which I would describe more like blisters), genital ulcers, headaches, unexplained anxiety,fatigue, weight loss, trouble sleeping and joint pain, I also get a share pain in my right side which when it flares up it hurts anywhere from under my right rib down to where my ovary would be. The worst symptom for me is the joint pain as it is in my hands, elbows, hips and knees (im 27 years old) this is followed closely by the fatigue which will just totally wipe me out of energy and I have what can only be described as brain fog.
The Behcets specialist told me he didnt want to label me with behcets yet but im unsure why. I have been put on Colchicine and have been taking it for about 7 weeks but im yet to notice a difference. I also take amitriptyline at night to help me sleep. I have graves disease too but have recently had a thyroidectomy and my thyroid levels are normal so I know this isnt adding to the joint pain or other symptoms.
Im just interested to hear what treatments can help with joint pain and also how long it took people to get a definite diagnosis of Behcets? Also do people suffer with similar symptoms to these.
Sorry for the long post!
Thanks for reading