After an exhausting 18 months fighting with the DWP to get my DLA care component. As in with my Behcets I have neurological and joint problems and many other health problems. Today I had my tribunal. To say it went wrong is an understatement. I knew I was in trouble when told Behcets is unknown in Britain and I cant have it. Even though I am half Turkish. Then asked how it affected me. I have limited cognitive function, zilch memory recall and could not think of a thing to say. Even though it has robbed me of my independance, my future as a nurse after beginning training and my husbands who had to give up nurse training to look after me. In the end and after a near 1 hr grilling whereby my legs where going into spasm I was told I could get low rate but that this would be revised in 6 months. Please when fighting the DWP get a welfare rights person to help you. Every local authority has one. I couldnt even remember to tell them why I stay in bed all day- because I have constant exhaustion. Photo is me in my student nurse uniform. Now a distant dream.
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