my daughter: was diagnosed with bechets and... - Behçet's UK

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my daughter

trisha64 profile image
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was diagnosed with bechets and crohns , after a short but very violent illness that resulted in her colon being removed as it was rupturing ,,

she has recently stopped taking humara as she was reacting badly to it ,, has anybody else got both and how does it affect them ??

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trisha64 profile image
trisha64
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2 Replies
marktiger profile image
marktiger

Hi sorry to hear about your daughter, I cant offer a soloution to her problem but I to suffered with the two conditions all my life and in the end my bowel was removed but I am now 50 and dont think my eating habits etc helped. I would suggest a healthy diet and avoid any thing that makes it worse. But after the shock of having it removed my life is so much better now and I can do almost anyhthing were in the past I couldnt. Hope she gets better soon

bec10 profile image
bec10

Hi Trish, how old is your daughter? My daughter is 12 and suffers from behcets and sometimes they think she has crohns as well, they do all sorts of tests then rule it out again but it has been going back and forth for years whether she has the crohns additional to the behcets. My daughter also reacted badly to humira, and etanercept, then we managed on infliximab for 2.5 years but now thats not working either.

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