Behcet's Syndrome Society


I have had 20 years of hell ranging from mini strokes to pulmonary embolism and lots in between. Now on 2nd opinion trying to get diagnosis. I know it is BS as I have family in Turkey it.

How do you get a Rheumatologist to listen. Have 10 consultants for various problems but no one to look at bigger picture. Any hope for me. I am 43 and disabled with joint problems.

1 Reply

One ray of hope is to contact the Behcets Syndrome Society who have a list of Behcets consultants in the UK, better still become a member and find out about the new centers of excellence.


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