Its a long story but if you will bare with me I don't mind explaining it. My name is Tony, when i was 7 I started getting mouth ulcers, real bad the sizeof your thumb nail and would have batches of as many as 30 a time. I have had many stays in hospital over the years from them. I saw various specialists about them but never found out what caused them or a way to stop them.
Anyway I celebrate my 39th birthday next month so have suffered with these for 32 years. i gave up all hope of ever finding out what was going on.. Well last year I started getting pains in my knees and fingers so paid a visit to my occ health department in work. After many hospital visits I was told yesterday that its 99% certain I have behects. However , I now have to have an MRI on my brain due to the number of constant Migranes I get every time i get ulcers, on top of this I need a nerve response test as i now also have carpal tunnel in my left hand. this last year I have seemed to fall apart.
One thing I get though that I have not read anywhere else is sore skin. not ulcers or sores, but just sore to the touch like someone is dragging a razor up it!
I have been reading since yesterday trying to understand whats happening and going to happen to me. I'm finding all this quite hard as I'm a firefighter and am really hoping I can continue with my job.
I have not been prescribed medicines other than steroids yet as they want me to have the MRI first to ensure i don't have nuro behcerts.
Anyway guys thanks for listening
Hi Tony and welcome to the site. I have suffered with BD for 30 years now and this site and it's great co patients have been a real help. We are a friendly bunch and here for you in times of pain or just a rant or better still good news!!!
Sadly there is no test for BD and not enough knowledge. The disease seems to affect us all differently and we do tend to have to help ourselves with regards to symptoms, treatments, meds etc finding out as much info as possible to arm ourselves on visits to docs and hospitals. This is why the site is so good as we can compare and help each other in many many ways. You should go to Behcets.org.uk and you will find lots of info, advice about BD and help in lots of ways.
Hope this helps.