Infertility and Behcets

[Kayhold]

Sorry for the TMI.

Did anyone have infertility issues caused by the awful cervical mucus that comes with Behcets?

[magician]

cervical mucus concern not clear to me. But i did have a miscarriage when i was 26 and was not able to conceive again.

[sian34 in reply to magician]

how does private messenging work?

[goodlife in reply to sian34]

click on the envelope at the top of the page in the green banner...then click on new conversation and put in your recipients name.

[sian34 in reply to goodlife]

Thanks, Goodlife

I realize now I have not been logged in when using site.

I have tried to send a private message to Kayhold -hopefully it will work.

[nurse_ratchet]

I am not familiar either with the mucous you speak about, however I am with the infertility bit. I was sent to a fertility clinic at 34 -35 yrs of age after 'trying' for 1 1/2 yrs. What came of that is that I was thrown into early premenopause, according to the bloodwork, mostlikely by BD. I gave up trying after a couple procedures and meds. I'm 40 now and have erratic periods now- was regular back then. At least I have my 19 yr old son from a "oops" when I was 21! Phew! I suggest you get referred to a fertility specialist if you haven't already Good luck!

[Michja]

Hi, I have been diagnosed with BD for only 5 months but have had symptoms for the past 25 years. My 11 year old daughter also has BD but her symptoms are far worse as it includes eyes.

I had a normal healthy life until I became sick aged 17. My number 1 symptom was what I now know as facial, hair, mouth, nose and genital ulcers, headaches, joint pain and major fatigue. I was suppose to have Glandular fever but the blood tests never showed a diagnosis. Gyno would laser and cut out what he believed to be herpes virus, BUT they all came back negative. He said "I didn't Understand" I said "Clearly as I have never had a relationship with a male". I left.

Over the years I have had now 5 operations for endo that was also found on my bowel and bladder and had 3 cysts burst on my ovary. All putting me in hospital. At the age of 27 I decided to try and have a baby, also told i was in early menopause. Went to a herbalist and after 2 miscarriages and 2 years of spending a fortune on trying to have my bundle of joy it finally worked. When my daughter was 6 months I started trying again. It still took 6 months and herbs but I fell pregnant. At 29 weeks my liver started to fail and my son was born at 32 weeks. Very skinny, healthy but it was scary. I feel he also has a touch of BD as he gets ulcers on face, body and up nose, bad asthma, but no headaches. So I'm not sure and I'm not thinking about it. I did beg the Dr for another chance at having a baby but because I didn't clot for a week after the birth he told me to go away and be happy, the best advice ever.

So sorry to go on and on, but now my daughter has BD I'm so happy I have only 2 as I feel guilty for her pain.

I feel the best I have ever felt and I must have forgotten what it felt like to feel well. I'm on colchicine morning and night and I can jog again. I still get a few ulcers but not all over my face every day only about 1 a month. My family can't believe it. To be honest, I feel sad for my daughter but I won't let specialists do things to her they did to me. I'm so much wiser. Her Dr's help diagnose me.

PS I have read others who have had similar problems in the UK BD web sight.

Good Luck and finding the right specialist is the key.

[AK13]

Don't really no the reason why to be honest but I do have issues there but I was told I would never have children it was hard but my husband and i accepted it an got 3 kittens! Lol Then nearly two years ago now I kept feeling ill but it felt different and for the hell of it I took a test it was positive I can tell you my house was mute for almost a week. My beautiful HEALTHY baby girl turned one on the 4th so there not always right I'm proof. I won't lie the pregnancy was rough as I was one of the unlucky one who got worse and I refused meds except steroids to build her lungs as she could have come at anytime. Unfortunately since she was born I have been in a constant flare that does not seem to respond to meds at the mo so I can't do as much with her as I would like and I feel guilty like she deserves a mummy who can chase her an is not tired all the time but then she laughs and smiles at me I melt it's hard but we'll get there. If I could give you one piece of advice it would be don't obsess over it as it was only when I didn't think about it anymore she arrived! Enjoy the practice